Talk Cancer » Rectal Cancer

Describing mankind

admin — Mon, 14 Feb 2005 00:00:00 +0000

Question:

> Have you called them? I sent in five rebated the week of Christmas and > received four of them by the third week of January. The fifth said I > hadn’t submitted the UPC. I called them and offered to provide a copy of > it. They immediately approved it and I had the check the next week.

Really? HOW did you call them? What was the telephone number? How in blazes were you able to speak to someone at Symantec? Because, to many of us, your story sounds like a pile of horse manure.

Response:

"A carrot a day can help you prevent colon-rectal cancer. My gosh…, I hope they eat it!?!" —-Jay Leno

Response:

We have been looking for a word to describe mankind. Is it cruel? Selfish? Stupid? Ignorant? Unkind? Unimaginative? Ridiculous? No. We have found the perfect word to describe mankind. Disgusting. Signed The Borg

Response:

Somebody found the blonde in the porno group defecating, then eating her own shit with sultriness, eh? "Borg" wrote in message

Response:

anyone read "Intuitive Eating" by Tribole and Resch?

admin — Tue, 02 Dec 2003 00:00:00 +0000

Question:

"Jayjay" wrote I searched and couldn’t find any mentions of this book for the last couple of years here. Someone just recommended it to me and I was wondering if anyone here had read it and had any reactions?

http://www.amazon.com/exec/obidos/tg/detail/-/0312957211/ref=sib_rdr_… I suggest you check out your local library to see if they have it available for you.

If they don’t, they can probably get it for you through the interlibrary loan program. It rocks! — Walking on . . . Laurie in Maine 207/110 60 inches of attitude! Start: 2/02 Maintained since 2/03

Response:

I searched and couldn’t find any mentions of this book for the last couple of years here. Someone just recommended it to me and I was wondering if anyone here had read it and had any reactions?

Yep, I read it. It’s pretty well-written, and the authors know their field (although they are pretty immured in the FDA "food pyramid"–unsurprising, considering it was written several years ago, and that the authors are professional nutritionists). It’s worth reading, but for a more up-to-date and scholarly approach to nutrition, I suggest Walter Willett’s "Eat, Drink, and Be Healthy". T.

Response:

I searched and couldn’t find any mentions of this book for the last couple of years here. Someone just recommended it to me and I was wondering if anyone here had read it and had any reactions?

Put the title into a search engine and you’ll find it discounted all over the place. It’s been out since 1996. Mike

Response:

I agree with Jay Jay here. It is a 24 hours a day "thing’ with eating! I need to keep trying to EVERY single day be truthful wit myself ! Like i said with his ‘tough luv’ as you get upon the ole scale and FACE where you are by looking at REAL FACTS! I so often try to skip over what is needed to control myself. After I look in here I kid of ‘wake up’ AGAIN and I find myslf. I like this way that i tells it with ‘his tuff luv’ and it IS reality !! Face myself in my mirror and look at the scale and than I FEEL control AGAIN! Hope everyone is doing well after the feast!! I have not gained I’m SHOCKED! BUT HAPPY!!!!!YES!!!!! glo

Response:

Patricia do you have ANY idea what you just said and what you just responded to. The guy is trying to learn how to eat well and you are discouraging him from doing the research and learning on his own, instead you tell him to just exercise. Its not about the 1 hr of exercise you do a day, its about what you put into your body the other 23 hrs of the day! Take your blinders off honey. stop being a total fucktard all the time

Response:

Fuhgeddaboudit. Use the money toward a pair of cross trainers and start exercising.

Did you know that in some people exercise can produce an allergic reaction? I am not kidding. — Diva ***** The Best Man for the Job May Be A Woman

Response:

I searched and couldn’t find any mentions of this book for the last couple of years here. Someone just recommended it to me and I was wondering if anyone here had read it and had any reactions?

http://www.amazon.com/exec/obidos/tg/detail/-/0312957211/ref=sib_rdr_… I suggest you check out your local library to see if they have it available for you.

Response:

I searched and couldn’t find any mentions of this book for the last couple of years here. Someone just recommended it to me and I was wondering if anyone here had read it and had any reactions?

Response:

Fuhgeddaboudit. Use the money toward a pair of cross trainers and start exercising. The main problem today is that people put more food in their stomachs than they work off in exercise. Plus they aren’t healthy because they don’t exercise. The #3 cancer killer is colo-rectal cancer and exercise helps prevent colo-rectal cancer according to a clinical study I heard of last month. If you’re worried about your eating, then do a food diary for about a month and let us know what you find out. – Hide quoted text — Show quoted text – I searched and couldn’t find any mentions of this book for the last couple of years here. Someone just recommended it to me and I was wondering if anyone here had read it and had any reactions?

Response:

My 2 yr. anniversary

admin — Fri, 16 May 2003 00:00:00 +0000

Question:

I just found out this year that I had a hernia and did not know of it till the doc told me about it. Yes Elaine, Life is great !!! It was also great, when the doc told me last month, that I could see him in FIVE years, usually it had been every year till the last checkup, when he said that I could see him in three years, He found no polyps at all after three years, and that is greeaatt : ) Mike. PS, I have had at least nine blockages since 95,due to my love of food, I learn sloowwly ……… : ( – Hide quoted text — Show quoted text -Elaine wrote: > I had rectal cancer in 1995, stage 2, with colostomy and life is great. I > have had some obstructions and I have a hernia but glad not to see cancer > again. Good luck to all…. > Elaine > "sincerely" wrote in message > news:3EE54FA6.B9453A6A@attbi.com… > > I haven,t been around for some time and remember you well Jim, I was > informed > > of my cancer on 5/2/95, Stage 2 and I still have my colostomy. I chose > not to > > be reconnected and I have not regretted it yet. I live a simple life and > have > > not been strongly affected by my cancer. Life is great and all is well > > ……………. Good Luck to all of you ……… Mike. > > "James Rice (fullnet)" wrote: > > > Congrats, Susan. > > > Yes, I remember how freaked out you were. BTW, I had my 6th anniversary > > > for a colostomy on June 2, made necessary due to rectal cancer and have > had > > > no problems. Hard to believe time passes so quickly. Wishing you all > the > > > best. > > > Jim

Response:

I had rectal cancer in 1995, stage 2, with colostomy and life is great. I have had some obstructions and I have a hernia but glad not to see cancer again. Good luck to all…. Elaine "sincerely" wrote in message

news:3EE54FA6.B9453A6A@attbi.com… – Hide quoted text — Show quoted text -> I haven,t been around for some time and remember you well Jim, I was informed > of my cancer on 5/2/95, Stage 2 and I still have my colostomy. I chose not to > be reconnected and I have not regretted it yet. I live a simple life and have > not been strongly affected by my cancer. Life is great and all is well > ……………. Good Luck to all of you ……… Mike. > "James Rice (fullnet)" wrote: > > Congrats, Susan. > > Yes, I remember how freaked out you were. BTW, I had my 6th anniversary > > for a colostomy on June 2, made necessary due to rectal cancer and have had > > no problems. Hard to believe time passes so quickly. Wishing you all the > > best. > > Jim

Response:

I haven,t been around for some time and remember you well Jim, I was informed of my cancer on 5/2/95, Stage 2 and I still have my colostomy. I chose not to be reconnected and I have not regretted it yet. I live a simple life and have not been strongly affected by my cancer. Life is great and all is well ……………. Good Luck to all of you ……… Mike. – Hide quoted text — Show quoted text -"James Rice (fullnet)" wrote: > Congrats, Susan. > Yes, I remember how freaked out you were. BTW, I had my 6th anniversary > for a colostomy on June 2, made necessary due to rectal cancer and have had > no problems. Hard to believe time passes so quickly. Wishing you all the > best. > Jim

Response:

Congratulations!!! My wife and I recently celebrated our 28th year together and I celebrated my 28th year as an Ileostomate! An Ostomy is for LIVING!!!!

Response:

Yes, Susan, I remember how "freaked out" you were. You’ve come a long way, lady! I’m happy for you. I may have to face Remicade in the not too distant future myself. Any problems? BTW, I am approaching my 3rd anniversary in July. I’ve never been as healthy. My only problem now is to STOP eating! I was at Mick’s the other night and ordered "Fried Green Tomatoes" (if you’ve never had them, and there’s a Mick’s near you, you MUST do it!). I took one look at that huge plate and said "I can’t eat half of that." Guess what! I CAN’T BELIEVE I ATE THE WHOLE THING! It was the most fun I’ve had out of bed! Love & Peace, Connie

Response:

Susan, Congrats! Hey, my spell checker says that should be Contrast!. I guess that’s because of the contrast between the worried uninformed Susan and the knowledgeable Susan who takes the dips in the road in stride. Rob bch m8 wrote: > Hi everyone! > Can you believe my 2 yr. ostomy anniversary is here already? I don’t > have any problems with it to speak of. Still battling the CD – have > Remicade every 10 weeks and some female problems to keep an eye on. > Does anyone remember how freaked out I was? What happened to eMi? She > was recovering when I had surgery. > I went to Florida last week and had no problems with all the heat and > humidity. > Life isn’t too bad…I have "ostomy moments" but they pass quickly. > Susan

– Man is nothing else but what he makes of himself. — Jean-Paul Sartre We become what we think about. — Spencer Johnson I am everything I pretend to be. — Me

Response:

Congrats, Susan. Yes, I remember how freaked out you were. BTW, I had my 6th anniversary for a colostomy on June 2, made necessary due to rectal cancer and have had no problems. Hard to believe time passes so quickly. Wishing you all the best. Jim – Hide quoted text — Show quoted text -bch m8 wrote: > Hi everyone! > Can you believe my 2 yr. ostomy anniversary is here already? I don’t > have any problems with it to speak of. Still battling the CD – have > Remicade every 10 weeks and some female problems to keep an eye on. > Does anyone remember how freaked out I was? What happened to eMi? She > was recovering when I had surgery. > I went to Florida last week and had no problems with all the heat and > humidity. > Life isn’t too bad…I have "ostomy moments" but they pass quickly. > Susan

Response:

Yes, I remember very well how freaked out you were, and I’ve admired tremendously how well you’ve done and how far you’ve come. Keep on truckin’ and many more anniversaries. David (formerly davidr…@aol.com)

Response:

susan!!! seems like it was yesterday you were freaking out all over the place. now you’re one of the gang. i’m very proud of you. good job! Lauren! (take out the "nojunk" to reply) beer drinking, sax playing, baseball junkie on a rampage … beware!

Response:

Hi everyone! Can you believe my 2 yr. ostomy anniversary is here already? I don’t have any problems with it to speak of. Still battling the CD – have Remicade every 10 weeks and some female problems to keep an eye on. Does anyone remember how freaked out I was? What happened to eMi? She was recovering when I had surgery. I went to Florida last week and had no problems with all the heat and humidity. Life isn’t too bad…I have "ostomy moments" but they pass quickly. Susan

Response:

embarrassing moment

admin — Fri, 02 May 2003 00:00:00 +0000

Question:

"Slap your stomach in mock disgust, and say "I should have eaten something before going out tonight."

Response:

I went to a dear friend’s funeral not so long ago. I had not had my stoma too long and was pretty nervous of how it would behave. I decided to sit at the back of the church so I could be very inconspicuous. Sadly the stoma had different ideas. Just as all went quiet in the church it decided to let it’s presence be known, very loudly. The three ladies in the seats in front of me immediately turned round in unison to look straight at me with a look of absolute disgust. Fortunately, the two friends I had gone to the church with just burst out laughing relieving my embarrassment a little. Although I was embarrassed at the time I feel sure that my deceased friend would have died laughing! Have fun,farts and all! sharon

Response:

Priceless . . . . . . . — PcolaPhil Were it not for the brave, there would be no land of the free… "p.bottomley" wrote in message

news:EkDsa.138$Bx.27921@newsfep2-gui.server.ntli.net… | I went to a dear friend’s funeral not so long ago. I had not had my stoma | too long and was pretty nervous of how it would behave. I decided to sit at | the back of the church so I could be very inconspicuous. Sadly the stoma had | different ideas. Just as all went quiet in the church it decided to let it’s | presence be known, very loudly. | The three ladies in the seats in front of me immediately turned round in | unison to look straight at me with a look of absolute disgust. Fortunately, | the two friends I had gone to the church with just burst out laughing | relieving my embarrassment a little. Although I was embarrassed at the time | I feel sure that my deceased friend would have died laughing! | Have fun,farts and all! | sharon | | |

Response:

LO-Frickin-L "PcolaPhil" wrote in message

news:THGsa.52653$4P1.4890324@newsread2.prod.itd.earthlink.net… – Hide quoted text — Show quoted text -> Priceless . . . . . . . > — > PcolaPhil > Were it not for the brave, there would be no land of the free… > "p.bottomley" wrote in message > news:EkDsa.138$Bx.27921@newsfep2-gui.server.ntli.net… > | I went to a dear friend’s funeral not so long ago. I had not had my > stoma > | too long and was pretty nervous of how it would behave. I decided to > sit at > | the back of the church so I could be very inconspicuous. Sadly the > stoma had > | different ideas. Just as all went quiet in the church it decided to > let it’s > | presence be known, very loudly. > | The three ladies in the seats in front of me immediately turned > round in > | unison to look straight at me with a look of absolute disgust. > Fortunately, > | the two friends I had gone to the church with just burst out > laughing > | relieving my embarrassment a little. Although I was embarrassed at > the time > | I feel sure that my deceased friend would have died laughing! > | Have fun,farts and all! > | sharon > | > | > |

Response:

On Fri, 2 May 2003 16:31:16 -0700, p.bottomley wrote (in message ): > I went to a dear friend’s funeral not so long ago. I had not had my stoma > too long and was pretty nervous of how it would behave. I decided to sit at > the back of the church so I could be very inconspicuous. Sadly the stoma had > different ideas. Just as all went quiet in the church it decided to let it’s > presence be known, very loudly. > The three ladies in the seats in front of me immediately turned round in > unison to look straight at me with a look of absolute disgust. Fortunately, > the two friends I had gone to the church with just burst out laughing > relieving my embarrassment a little. Although I was embarrassed at the time > I feel sure that my deceased friend would have died laughing! > Have fun,farts and all! > sharon

After my surgery for colon and rectal cancer a little over a year ago, I went back to playing golf as soon as possible. I had a few occasions when I would cut loose in the middle of someone’s backswing, or while standing over my own put. Only one of my friends knew about the fact that I had surgery and was undergoing chemo. One day I just announced to them after our round what the deal was, and all is fine now. I just pardon my "noisemaker" every once in a while now and everyone gets a bit of a chuckle about it. Don

Response:

Mich

admin — Fri, 24 Jan 2003 00:00:00 +0000

Question:

I just saw Shaz’s post about holding the wake for Mich. I am so sorry! I don’t get to the chats much at all, and had not heard. What happened? Deborah

Response:

Was that an earler post that I haven’t received yet? Fill me in, if you will, I do care! Best— Ron Debber wrote in message

news:3E31F8C1.EF9B6EF@earthlink.net… – Hide quoted text — Show quoted text -> I just saw Shaz’s post about holding the wake for Mich. I am so sorry! > I don’t get to the chats much at all, and had not heard. What happened? > Deborah

Response:

I’m so sorry that you are just hearing this news. Mich passed away on New Year’s Eve. He had a recurrence of his rectal cancer this past summer and it really wasn’t treatable. He chose not to post about it on the boards. If you go to Shaz’ board – http://pub26.ezboard.com/bostomymessageboard – she has a forum – Dedicated To Mich. You might like to read everyone’s thoughts and add your own. Mich was really quite an asset to the Internet ostomy community. ~~~~Pat "Ron Gould" wrote in message

news:b0t21r0vm1@enews4.newsguy.com… – Hide quoted text — Show quoted text -> Was that an earler post that I haven’t received yet? > Fill me in, if you will, I do care! > Best— > Ron > Debber wrote in message > news:3E31F8C1.EF9B6EF@earthlink.net… > > I just saw Shaz’s post about holding the wake for Mich. I am so sorry! > > I don’t get to the chats much at all, and had not heard. What happened? > > Deborah

Response:

Rectal cancer aftermath

admin — Wed, 02 Oct 2002 00:00:00 +0000

Question:

Four years ago I had cancer surgery resulting in removal of my entire rectum and part of my colon. I had a temporary ileostomy that was reversed after about three months. Since then I have suffered greatly from what I understand is called low anterior resection syndrome – very frequent (sometimes over 50 a day!) and sudden bowel movements. My doctors have no solution and I have been able to find very little information to help me deal with this debilitating condition. Does anyone have any information of advice that the could share with me? BD

Response:

Ahh, yes. In the colorectal cancer newsgroup run by ACOR, this is called MPS- multiple poop syndrome

Response:

Radiation and chemo at the same time

admin — Tue, 10 Sep 2002 00:00:00 +0000

Question:

Who has experience with radiation and chemo at the same time? This is for cancer of the esophagus with 2 small mets of a quarter inch in diameter thanks for the response

Response:

I had radiation and chemo at the same time for rectal cancer. The chemo is supposed to make the tumor more sensitive to radiation. What else would you like to know?

– Hide quoted text — Show quoted text – Who has experience with radiation and chemo at the same time? This is for cancer of the esophagus with 2 small mets of a quarter inch in diameter thanks for the response

Response:

Who has experience with radiation and chemo at the same time? This is for cancer of the esophagus with 2 small mets of a quarter inch in diameter thanks for the response

I had chemo alone for 3 months and then a month of chemo and radiation taken together for esophageal cancer. No mets, but a 7 cm tumor at the distal esophagus. Had no effects from the chemo alone, but the radiation burned the heck out of my chest, back and esophagus. Had a bad couple of weeks until things healed up a bit. Best place for answers to esophageal cancer questions is the EC list on ACOR. You can subscribe at: http://listserv.acor.org/archives/ec-group.html With more than 1000 patients, survivors and caregivers online, there isn’t much we haven’t seen or experienced – a great source of info. Eric http://www.ngc1514.com/Dragon Eric Unofficial C8 Homepage http://www.ngc1514.com

Response:

I had pelvic radiation along with 5FU and mytomiacin for my stage II rectal cancer. The tumor was 3cm x 5cm and was 7cm from the anal verge. My surgeon wanted to shrink the tumor and felt that the mytomiacin was the best course (a very strong and nasty drug mainly used for anal cancer). The combination was pretty nasty for the first six weeks, i.e.; painful gas, diarrhea, and a very tender sphincter. The radiation also caused fatigue toward the end. Overall not a pleasant experience, however, my tumor was completely gone at time of surgery and my surgeon was able to save the sphincter so I don’t have an appliance. The radiation in and of itself is toxic and difficult to deal with, the chemo side effects will depend on the type used. Good luck and keep us all informed. — Steve Gossman Survivor webmaster Colorectal Cancer Network http://www.colorectal-cancer.net Links to support groups, assistance and information

Response:

Thank-you

admin — Fri, 05 Apr 2002 00:00:00 +0000

Question:

Yesterday I had my last dose of adjuvant 5FU chemo for Duke’s C rectal cancer. I want to thank all of you on this group who have answered my questions and posted their stories – it has made me feel that I’m not alone, that there are others out there going through this. I know I’m not in the clear just yet, but I’m just so happy to be at this point. Michele and Lowkey I wish you all the best, my thoughts and prayers are with you. I will continue to lurk around this group as it has given me much support through the past 10 months or so. Thankyou!

Thanks for the thoughts and prayers. I hope things start to turn around for you very soon. As you know, I cheerfully accept any and all attempts at inducing divine intervention on my behalf. As one striken with this dread illness, I suspect that your prayers (and mine as well, not to put too fine a point on it…) probably count as double. If you are of the same mind, and don’t fear that you’ll be tainted by accepting the good intentions of a modern pagan, I will badger my Goddess (as much as I dare) on your behalf. Sound like a plan? Lowkey the lowly Labrat

Response:

Yesterday I had my last dose of adjuvant 5FU chemo for Duke’s C rectal cancer.

Congratulations, Nat!! I want to thank all of you on this group who have answered my questions and posted their stories – it has made me feel that I’m not alone, that there are others out there going through this. I know I’m not in the clear just yet, but I’m just so happy to be at this point. Michele and Lowkey I wish you all the best, my thoughts and prayers are with you.

Thank you; your prayers and good thoughts are very much appreciated by me. Michele

Response:

Hi Nat, We wish you well!! Enjoy life! Jeff

– Hide quoted text — Show quoted text – Yesterday I had my last dose of adjuvant 5FU chemo for Duke’s C rectal cancer. I want to thank all of you on this group who have answered my questions and posted their stories – it has made me feel that I’m not alone, that there are others out there going through this. I know I’m not in the clear just yet, but I’m just so happy to be at this point. Michele and Lowkey I wish you all the best, my thoughts and prayers are with you. I will continue to lurk around this group as it has given me much support through the past 10 months or so. Thankyou!

Response:

Pain in the knees

admin — Wed, 16 Jan 2002 00:00:00 +0000

Question:

Was your arthritis a complication or related in any way to your colostomy or your cancer? I also have a colostomy as a result from rectal cancer. — Marc from AK "Classic 42" wrote in message

news:a2el2f$18f$1@paris.btinternet.com… – Hide quoted text — Show quoted text -> Although my colostomy was the result of cancer and not because of Crohns or > any inflammatory bowel disease I developed osteoarthritis in both knees. > Basically I wore them out. For some years I have taken Diclofenac Sodium > as ‘Voltarol’ SR (Slow Release) I have not had any problems with this drug > but maybe it is because I have all my small and a lot of my large intestine > still intact. Just a thought though,. I know that Voltarol does not suit > everybody. By the way I had my right knee replaced with a prosthesis 5th. > Dec. What a relief, no more pain and the things I can do now are countless. > What a pity that medical science cannot yet give us a prosthesis for the > entire bowel, just think of it!!!!! > Cheers > Classic > "Mark Barber" wrote in message > news:PHW18.375$_q3.66546@news1.cableinet.net… > > I have bad arthritis that is thought to be linked to inflammatory bowel > > disease (I had U.C.). I take Vioxx 25mg 1 a day as that is thought to be > the > > best anti inflammatory for people with bowel conditions as most others > > including aspirin and ibroprufen are harse on the stomach. > > The best advise though is to remain as active as possible and try and keep > > your weight under control (my biggest problem) > > Mark > > "Martin" wrote in message > > news:3C464AA3.BDD53533@videotron.ca… > > > I would need your experience advices > > > I’ve lived with Crohn Colitis for many years, I have now an ileostomy > > > since > > > two years now. > > > But since the last few days, I have started to have some pain in both of > > > my knees. > > > And it is getting more and more painful as time goes. > > > Might that be cause by our disease ? If so what can we do about it ? > > > Also, I have started to take "Celebrex", but it does not seem to be very > > > efficient ! > > > I’m a little bit lost and don’t know what to do. > > > Any suggestion would be appreciated ! > > > Martin

Response:

Although my colostomy was the result of cancer and not because of Crohns or any inflammatory bowel disease I developed osteoarthritis in both knees. Basically I wore them out. For some years I have taken Diclofenac Sodium as ‘Voltarol’ SR (Slow Release) I have not had any problems with this drug but maybe it is because I have all my small and a lot of my large intestine still intact. Just a thought though,. I know that Voltarol does not suit everybody. By the way I had my right knee replaced with a prosthesis 5th. Dec. What a relief, no more pain and the things I can do now are countless. What a pity that medical science cannot yet give us a prosthesis for the entire bowel, just think of it!!!!! Cheers Classic "Mark Barber" wrote in message

news:PHW18.375$_q3.66546@news1.cableinet.net… – Hide quoted text — Show quoted text -> I have bad arthritis that is thought to be linked to inflammatory bowel > disease (I had U.C.). I take Vioxx 25mg 1 a day as that is thought to be the > best anti inflammatory for people with bowel conditions as most others > including aspirin and ibroprufen are harse on the stomach. > The best advise though is to remain as active as possible and try and keep > your weight under control (my biggest problem) > Mark > "Martin" wrote in message > news:3C464AA3.BDD53533@videotron.ca… > > I would need your experience advices > > I’ve lived with Crohn Colitis for many years, I have now an ileostomy > > since > > two years now. > > But since the last few days, I have started to have some pain in both of > > my knees. > > And it is getting more and more painful as time goes. > > Might that be cause by our disease ? If so what can we do about it ? > > Also, I have started to take "Celebrex", but it does not seem to be very > > efficient ! > > I’m a little bit lost and don’t know what to do. > > Any suggestion would be appreciated ! > > Martin

Response:

I too had Crohn’s colitis and an ileostomy. I am on Celebrex for joint pain and have been for two years. It took a little while to work but it did and it does. "DavidRohn" wrote in message

news:20020117104106.12307.00001780@mb-mu.aol.com… – Hide quoted text — Show quoted text -> People who have Crohns Disease often also have arthritis. Furthermore, > some medications used to treat Crohns Disease — especially Imuran — can cause > joint problems. > Ever since having an ileostomy, my joint problems have largely been > eliminated. > I would be very careful when taking any medications to treat joint > problems or arthritis without the expressed approval of my gastroenterologist. > Many medications, including Celebrex, can cause problems for people with > intestinal problems or intestinal bleeding.

Response:

I have bad arthritis that is thought to be linked to inflammatory bowel disease (I had U.C.). I take Vioxx 25mg 1 a day as that is thought to be the best anti inflammatory for people with bowel conditions as most others including aspirin and ibroprufen are harse on the stomach. The best advise though is to remain as active as possible and try and keep your weight under control (my biggest problem) Mark "Martin" wrote in message

news:3C464AA3.BDD53533@videotron.ca… – Hide quoted text — Show quoted text -> I would need your experience advices > I’ve lived with Crohn Colitis for many years, I have now an ileostomy > since > two years now. > But since the last few days, I have started to have some pain in both of > my knees. > And it is getting more and more painful as time goes. > Might that be cause by our disease ? If so what can we do about it ? > Also, I have started to take "Celebrex", but it does not seem to be very > efficient ! > I’m a little bit lost and don’t know what to do. > Any suggestion would be appreciated ! > Martin

Response:

People who have Crohns Disease often also have arthritis. Furthermore, some medications used to treat Crohns Disease — especially Imuran — can cause joint problems. Ever since having an ileostomy, my joint problems have largely been eliminated. I would be very careful when taking any medications to treat joint problems or arthritis without the expressed approval of my gastroenterologist. Many medications, including Celebrex, can cause problems for people with intestinal problems or intestinal bleeding.

Response:

I would need your experience advices I’ve lived with Crohn Colitis for many years, I have now an ileostomy since two years now. But since the last few days, I have started to have some pain in both of my knees. And it is getting more and more painful as time goes. Might that be cause by our disease ? If so what can we do about it ? Also, I have started to take "Celebrex", but it does not seem to be very efficient ! I’m a little bit lost and don’t know what to do. Any suggestion would be appreciated ! Martin

Response:

Newby

admin — Fri, 21 Dec 2001 00:00:00 +0000

Question:

Colostomys can be done at any area of the colon – transverse, ascending, descending, sigmoid – the higher up the more liquid the stool – the closer to the rectal area the more formed and less chance of dehydration. The function of the colon is to absorb water, potassium and salt. The less colon you have the more chance of dehydration. "S Gonsalves" wrote in message

news:FMSU7.2732$J46.752615542@newssvr10.news.prodigy.com… – Hide quoted text — Show quoted text -> It is a colostomy that is done at the sigmoid portion of the colon. That is > what I have too. It makes it possible to irrigate and not wear a full size > pouch. Just a stoma cap. > Serv > (C) > "Marc" wrote in message > news:u27srgen77sma8@corp.supernews.com… > > Diaper rash eh? Sounds like fun (not). Thanks for the advice(warning). > What > > is a sigmoid colostomy? > > Marc from AK > > "Pearl L" wrote in message > > news:GNOU7.21260$fo.1570550@news1.rdc1.md.home.com… > > > Stomahesive paste simple provides additional protection for the > peristomal > > > area, area around the stoma to prevent breakdown from the diestive > > enzymes. > > > Just as a baby gets diaper rash so will we, around the stoma, if stool > > gets > > > on the skin. The more liquid the stool is the more chance of leakage. > With > > a > > > colostomy, especially a sigmoid colostomy where the stool is solid there > > is > > > not as much chance of breakdown. The paste also helps the faceplate > adhere > > > but there are some who do not find it necessary. > > > "Marc" wrote in message > > > news:u2735c1f4od7a2@corp.supernews.com… > > > > Hi > > > > My name is marc and I had surgery Nov 30th. It was rectal cancer and I > > had > > > a > > > > ABR. They took it all out. It was kind of a surprise that they did > take > > > out > > > > everything as I was expecting an iliostomy. I knew there was a > > possibility > > > > but … Oh well. Now I have a colostomy to deal with. I had my surgery > > at > > > > the Northwest colo-rectal clinic in Seattle. They were very > profesional > > > from > > > > the Dr.’s to the nurses. It made the experience bearable. I am back > home > > > in > > > > Fairbanks Alaska now recuperating. I am able to work a couple hours a > > week > > > > but don’t want to push it too much. > > > > After reading every post in this group it sounds like a nice group. I > > have > > > a > > > > question. The video I got from convatec shows a paste being used on > the > > > > wafer before you stick it on. My ET didn’t explain this. What is this > > > paste > > > > for and do I really need to use it? > > > > Thanks in advance > > > > Marc from AK

Response:

Oops. I hit reply to sender the first reply. Sorry. This is for the group. Thanks for the advice. Some of the terminology is foriegn to me. What is an Eakin seal? I Don’t have any uneven skin or wrinkles around the stoma so for now I think I will not use the paste as long as it works. I changed my wafer today, it lasted one week. Is that about normal? Marc from AK "DavidRohn" wrote in message

news:20011221173238.05885.00000696@mb-fu.aol.com… – Hide quoted text — Show quoted text -> Usually, paste is only needed if you have uneven skin in the peristomal > area. > Here are a few things that work for me. > (1) Less is better — I get much better wear time when I don’t use pastes, > powders or skin barriers — even framing tape. > (2) The big exception is Eakin Seals. Many people on this newsgroup have found > that Eakin Seals are magic with respect to comfort, prolonged wear time and > minimizing skin problems. > (3) Wafers with convexivity tend to reduce leakage even for people with normal > stomas.

Response:

It is a colostomy that is done at the sigmoid portion of the colon. That is what I have too. It makes it possible to irrigate and not wear a full size pouch. Just a stoma cap. Serv (C) "Marc" wrote in message

news:u27srgen77sma8@corp.supernews.com… – Hide quoted text — Show quoted text -> Diaper rash eh? Sounds like fun (not). Thanks for the advice(warning). What > is a sigmoid colostomy? > Marc from AK > "Pearl L" wrote in message > news:GNOU7.21260$fo.1570550@news1.rdc1.md.home.com… > > Stomahesive paste simple provides additional protection for the peristomal > > area, area around the stoma to prevent breakdown from the diestive > enzymes. > > Just as a baby gets diaper rash so will we, around the stoma, if stool > gets > > on the skin. The more liquid the stool is the more chance of leakage. With > a > > colostomy, especially a sigmoid colostomy where the stool is solid there > is > > not as much chance of breakdown. The paste also helps the faceplate adhere > > but there are some who do not find it necessary. > > "Marc" wrote in message > > news:u2735c1f4od7a2@corp.supernews.com… > > > Hi > > > My name is marc and I had surgery Nov 30th. It was rectal cancer and I > had > > a > > > ABR. They took it all out. It was kind of a surprise that they did take > > out > > > everything as I was expecting an iliostomy. I knew there was a > possibility > > > but … Oh well. Now I have a colostomy to deal with. I had my surgery > at > > > the Northwest colo-rectal clinic in Seattle. They were very profesional > > from > > > the Dr.’s to the nurses. It made the experience bearable. I am back home > > in > > > Fairbanks Alaska now recuperating. I am able to work a couple hours a > week > > > but don’t want to push it too much. > > > After reading every post in this group it sounds like a nice group. I > have > > a > > > question. The video I got from convatec shows a paste being used on the > > > wafer before you stick it on. My ET didn’t explain this. What is this > > paste > > > for and do I really need to use it? > > > Thanks in advance > > > Marc from AK

Response:

Diaper rash eh? Sounds like fun (not). Thanks for the advice(warning). What is a sigmoid colostomy? Marc from AK "Pearl L" wrote in message

news:GNOU7.21260$fo.1570550@news1.rdc1.md.home.com… – Hide quoted text — Show quoted text -> Stomahesive paste simple provides additional protection for the peristomal > area, area around the stoma to prevent breakdown from the diestive enzymes. > Just as a baby gets diaper rash so will we, around the stoma, if stool gets > on the skin. The more liquid the stool is the more chance of leakage. With a > colostomy, especially a sigmoid colostomy where the stool is solid there is > not as much chance of breakdown. The paste also helps the faceplate adhere > but there are some who do not find it necessary. > "Marc" wrote in message > news:u2735c1f4od7a2@corp.supernews.com… > > Hi > > My name is marc and I had surgery Nov 30th. It was rectal cancer and I had > a > > ABR. They took it all out. It was kind of a surprise that they did take > out > > everything as I was expecting an iliostomy. I knew there was a possibility > > but … Oh well. Now I have a colostomy to deal with. I had my surgery at > > the Northwest colo-rectal clinic in Seattle. They were very profesional > from > > the Dr.’s to the nurses. It made the experience bearable. I am back home > in > > Fairbanks Alaska now recuperating. I am able to work a couple hours a week > > but don’t want to push it too much. > > After reading every post in this group it sounds like a nice group. I have > a > > question. The video I got from convatec shows a paste being used on the > > wafer before you stick it on. My ET didn’t explain this. What is this > paste > > for and do I really need to use it? > > Thanks in advance > > Marc from AK

Response:

Hi My name is marc and I had surgery Nov 30th. It was rectal cancer and I had a ABR. They took it all out. It was kind of a surprise that they did take out everything as I was expecting an iliostomy. I knew there was a possibility but … Oh well. Now I have a colostomy to deal with. I had my surgery at the Northwest colo-rectal clinic in Seattle. They were very profesional from the Dr.’s to the nurses. It made the experience bearable. I am back home in Fairbanks Alaska now recuperating. I am able to work a couple hours a week but don’t want to push it too much. After reading every post in this group it sounds like a nice group. I have a question. The video I got from convatec shows a paste being used on the wafer before you stick it on. My ET didn’t explain this. What is this paste for and do I really need to use it? Thanks in advance Marc from AK

Response:

Usually, paste is only needed if you have uneven skin in the peristomal area. Here are a few things that work for me. (1) Less is better — I get much better wear time when I don’t use pastes, powders or skin barriers — even framing tape. (2) The big exception is Eakin Seals. Many people on this newsgroup have found that Eakin Seals are magic with respect to comfort, prolonged wear time and minimizing skin problems. (3) Wafers with convexivity tend to reduce leakage even for people with normal stomas.

Response:

Stomahesive paste simple provides additional protection for the peristomal area, area around the stoma to prevent breakdown from the diestive enzymes. Just as a baby gets diaper rash so will we, around the stoma, if stool gets on the skin. The more liquid the stool is the more chance of leakage. With a colostomy, especially a sigmoid colostomy where the stool is solid there is not as much chance of breakdown. The paste also helps the faceplate adhere but there are some who do not find it necessary. "Marc" wrote in message

news:u2735c1f4od7a2@corp.supernews.com… – Hide quoted text — Show quoted text -> Hi > My name is marc and I had surgery Nov 30th. It was rectal cancer and I had a > ABR. They took it all out. It was kind of a surprise that they did take out > everything as I was expecting an iliostomy. I knew there was a possibility > but … Oh well. Now I have a colostomy to deal with. I had my surgery at > the Northwest colo-rectal clinic in Seattle. They were very profesional from > the Dr.’s to the nurses. It made the experience bearable. I am back home in > Fairbanks Alaska now recuperating. I am able to work a couple hours a week > but don’t want to push it too much. > After reading every post in this group it sounds like a nice group. I have a > question. The video I got from convatec shows a paste being used on the > wafer before you stick it on. My ET didn’t explain this. What is this paste > for and do I really need to use it? > Thanks in advance > Marc from AK