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Back on the chain gang

Categories: Pancreatic Cancer

Question:

On Sun, 7 Nov 2004 17:11:34 -0600, "buster" <as…@cox.net> wrote: >Glad your back on the road! Sounds like a nightmare. Good luck!

Thanks buster.  I just hit a pothole.  A nightmare is a diagnosis of an aggressive pancreatic cancer.  Good luck to you as well. Don

Response:

I’ve resumed pegasys and knocked down shot #18 Friday evening.  So I missed one shot of pegasys and about 2 weeks (so far) with the riba. (I had a severe not totally explained allergic reaction that landed me in the hospital for 3 days and had the doctors scratching their heads and taking pictures of my rash.)  Well, maybe an hour after taking this shot I noticed a mild case of pruritis (itching) setting in and I let it go for a while before treating it so I know that the interferon was part of it. That’s common with alfa interferon 2a.   No rash has kicked in yet but I’m on the oral corticosteroid prednisone (40mg) clearing up the last remnants of the fun from last time.  I got this cream from the doc called Absorbase that has worked wonders on my dry skin.  It’s great.  I also have a drug called Hydroxyzine HCL that has pretty much taken care of the minor itching caused by the interferon 2a.  It’s working well so far but needs a recharge every 4 or 5 hours. I now think that possibly what got me in trouble before was I had itching and rash caused by interferon and possibly riba as well and then compounded that by having an allergic reaction to ibuprofen which gave me hives and swelled my face up.  These symptoms are documented and not uncommon.  I’m going to talk to my doc next week about resuming the riba.  I’m feeling pretty damn good right now and want to give tx my best shot. In fact I’m going out for a nice long walk in just a few.   I’ve seen some other 24 weekers (I’m a 2) not doing well lately and I want some insurance.  But I want to get off this fucking prednisone.  It caused my blood pressure to spike a little over normal and I think caused my white blood cells to bounce down to 2.0 from the already low tx levels while I was in the hospital.  That’s too low isn’t it?  I had a qualitative test done Friday also to make sure I haven’t already relapsed and had other labs drawn as well.   My last hemoglobin was  9.7 (10/27) not good but I’m doing fine.  I’ll find out more next week when I talk to the docs and check my Friday labs. I want to procede cautiously or am I already being reckless?  I want my SVR.  We’ll get this thing worked out. Don

Response:

Glad your back on the road! Sounds like a nightmare. Good luck! "Don" <ik…@nowhere.org> wrote in message

news:sapso0pmbmc1l1gd53sin0nmfdkqbe81mk@4ax.com… – Hide quoted text — Show quoted text -> I’ve resumed pegasys and knocked down shot #18 Friday evening.  So I > missed one shot of pegasys and about 2 weeks (so far) with the riba. > (I had a severe not totally explained allergic reaction that landed me > in the hospital for 3 days and had the doctors scratching their heads > and taking pictures of my rash.)  Well, maybe an hour after taking > this shot I noticed a mild case of pruritis (itching) setting in and I > let it go for a while before treating it so I know that the interferon > was part of it. That’s common with alfa interferon 2a.   No rash has > kicked in yet but I’m on the oral corticosteroid prednisone (40mg) > clearing up the last remnants of the fun from last time.  I got this > cream from the doc called Absorbase that has worked wonders on my dry > skin.  It’s great.  I also have a drug called Hydroxyzine HCL that has > pretty much taken care of the minor itching caused by the interferon > 2a.  It’s working well so far but needs a recharge every 4 or 5 hours. > I now think that possibly what got me in trouble before was I had > itching and rash caused by interferon and possibly riba as well and > then compounded that by having an allergic reaction to ibuprofen which > gave me hives and swelled my face up.  These symptoms are documented > and not uncommon.  I’m going to talk to my doc next week about > resuming the riba.  I’m feeling pretty damn good right now and want to > give tx my best shot. In fact I’m going out for a nice long walk in > just a few.   I’ve seen some other 24 weekers (I’m a 2) not doing well > lately and I want some insurance.  But I want to get off this fucking > prednisone.  It caused my blood pressure to spike a little over normal > and I think caused my white blood cells to bounce down to 2.0 from the > already low tx levels while I was in the hospital.  That’s too low > isn’t it?  I had a qualitative test done Friday also to make sure I > haven’t already relapsed and had other labs drawn as well.   My last > hemoglobin was  9.7 (10/27) not good but I’m doing fine.  I’ll find > out more next week when I talk to the docs and check my Friday labs. > I want to procede cautiously or am I already being reckless?  I want > my SVR.  We’ll get this thing worked out. > Don

Response:

- Hide quoted text — Show quoted text -On Sun, 07 Nov 2004 13:18:38 -0600, Don <ik…@nowhere.org> wrote: >I’ve resumed pegasys and knocked down shot #18 Friday evening.  So I >missed one shot of pegasys and about 2 weeks (so far) with the riba. >(I had a severe not totally explained allergic reaction that landed me >in the hospital for 3 days and had the doctors scratching their heads >and taking pictures of my rash.)  Well, maybe an hour after taking >this shot I noticed a mild case of pruritis (itching) setting in and I >let it go for a while before treating it so I know that the interferon >was part of it. That’s common with alfa interferon 2a.   No rash has >kicked in yet but I’m on the oral corticosteroid prednisone (40mg) >clearing up the last remnants of the fun from last time.  I got this >cream from the doc called Absorbase that has worked wonders on my dry >skin.  It’s great.  I also have a drug called Hydroxyzine HCL that has >pretty much taken care of the minor itching caused by the interferon >2a.  It’s working well so far but needs a recharge every 4 or 5 hours. >I now think that possibly what got me in trouble before was I had >itching and rash caused by interferon and possibly riba as well and >then compounded that by having an allergic reaction to ibuprofen which >gave me hives and swelled my face up.  These symptoms are documented >and not uncommon.  I’m going to talk to my doc next week about >resuming the riba.  I’m feeling pretty damn good right now and want to >give tx my best shot. In fact I’m going out for a nice long walk in >just a few.   I’ve seen some other 24 weekers (I’m a 2) not doing well >lately and I want some insurance.  But I want to get off this fucking >prednisone.  It caused my blood pressure to spike a little over normal

I mean blood sugar, not blood pressure.  Prednisone screws with your blood sugar among other things.  Nasty stuff. – Hide quoted text — Show quoted text ->and I think caused my white blood cells to bounce down to 2.0 from the >already low tx levels while I was in the hospital.  That’s too low >isn’t it?  I had a qualitative test done Friday also to make sure I >haven’t already relapsed and had other labs drawn as well.   My last >hemoglobin was  9.7 (10/27) not good but I’m doing fine.  I’ll find >out more next week when I talk to the docs and check my Friday labs. >I want to procede cautiously or am I already being reckless?  I want >my SVR.  We’ll get this thing worked out. >Don

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