Talk Cancer

Question:

Hi! Last year my daughter had one tumor in her lung……the doctors could not identify the type and therefore gave her no chemo but removed the mass and half of her lung. One year later it is back….same kind. Two tumors in her lung near her heart and 5 tumors on her chest wall. Anyone ever heard of anything like this before? They are experimenting with different chemo’s on her now. Thanks, Diana

Response:

You would have to know the stage of the tumor at the time of the operation.  If she was a stage 1 patient, standard treatment would be to remove the tumor and not provide any followup chemo. If the tumor returned, standard treatment would then be chemo and perhaps radiation. I am not sure what you mean by five tumors on her chest wall, and you should try to determine the type of lung cancer she has. .   – Hide quoted text — Show quoted text – Hi! Last year my daughter had one tumor in her lung……the doctors could not identify the type and therefore gave her no chemo but removed the mass and half of her lung. One year later it is back….same kind. Two tumors in her lung near her heart and 5 tumors on her chest wall. Anyone ever heard of anything like this before? They are experimenting with different chemo’s on her now. Thanks, Diana

Response:

The doctors have sent the pathology slides to many different hospitals and they can’t identify the type of cancer it is. They said it was so rare they’ve never seen it before but I would think at least a few people could have had this already. The pathologist are very excited/interested because of the rareness of it. It was stage 1 at first…and from what I’ve read when it has spread to the chest wall it is stage 3.

Response:

Have you reviewed the pathology reports.  Mesothelioma is a rare cancer but is identified.  I do not recall seeing a tumor that could not have a probable identification.  Why don’t you get the pathology reports and post them.   – Hide quoted text — Show quoted text – The doctors have sent the pathology slides to many different hospitals and they can’t identify the type of cancer it is. They said it was so rare they’ve never seen it before but I would think at least a few people could have had this already. The pathologist are very excited/interested because of the rareness of it. It was stage 1 at first…and from what I’ve read when it has spread to the chest wall it is stage 3.

Response:

Going to onc on Monday….I’ll see if I can get them and post them before I take her on vacation before her next chemo treatment.

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