Talk Cancer

Question:

Thank goodness I found someone with problems like I have. My left hip gets "caught" that’s what it feels like . I have trouble getting uncaught. But also exrays and bone skan shoed nothing. I have never heard anyone with this so I’m glad I came in here! Yes! I’m not alone with this after all. I use hot water bottle & it helps ! Also Ibuprofen & Tylonal helps me . God Bless, glo

Response:

Gloria Allen, I have had this "hip caught" problem since childhood.  For relief I lie on my back and lift the knee, on the affected side, up and across my body toward the opposite shoulder.  Then, slowly, move this knee from the opposite shoulder across my chest and out to the affected side. This usually gives a "pop" of relief.  I then straighten the leg back down and rest in that position for a while.   This has worked for me for years on end.  I hope it works for you. Best Wishes Susan E

Response:

Hi all – I started out with a questionable faulty epidural when my daughter was born.  I have had low back pain and swelling since 2 hours after my daughter was born.  The docs swear nothing went "wrong" with the epidural.  They chocked it up to the birthing process. Well that was 4 years and 3 months ago.  I have had swelling and pain EVERYDAY since then.  You learn to live with it.  Fun, fun.   Two years later after my dad died unexpectedly after a short (thankfully) bout with lung cancer I was diagnosed with Chronic Fatigue.  After a couple blackouts, more fatigue and pain in my hands they decided to add Fibromyalgia to the list. And the pain goes on. Now they have diagnosed MS from abnormal spinal tap, MIR’s with 20-25 spots and 2 leg-numbing episodes. My doc says MS can cause pain.  I’ve not found what will make it go away yet. Nothing seems to work 2 days in a row! What does work the most is 2 extra-strength tylenol and 1 Ultram.  I’m on Zoloft 200mg for depression.  I’ve been on Neurontin but I’m not sure if it worked and I wasn’t comfortable with the way the doc told me to take it. TO THE GROUP:  What dosages of Neurontin work for you? DeAnna

Response:

 HI! Sorry to hear of all what you had to endure!  I took neurontin for 5 years of 300 mg 3 times a day.  It worked really well!  I will go back on it if I need too. Diana N7dla <n7…@aol.com> wrote in message

news:20010504203248.27115.00001974@ng-fq1.aol.com… – Hide quoted text — Show quoted text -> Hi all – I started out with a questionable faulty epidural when my daughter was > born.  I have had low back pain and swelling since 2 hours after my daughter > was born.  The docs swear nothing went "wrong" with the epidural.  They chocked > it up to the birthing process. > Well that was 4 years and 3 months ago.  I have had swelling and pain EVERYDAY > since then.  You learn to live with it.  Fun, fun. > Two years later after my dad died unexpectedly after a short (thankfully) bout > with lung cancer I was diagnosed with Chronic Fatigue.  After a couple > blackouts, more fatigue and pain in my hands they decided to add Fibromyalgia > to the list. > And the pain goes on. > Now they have diagnosed MS from abnormal spinal tap, MIR’s with 20-25 spots and > 2 leg-numbing episodes. > My doc says MS can cause pain.  I’ve not found what will make it go away yet. > Nothing seems to work 2 days in a row! > What does work the most is 2 extra-strength tylenol and 1 Ultram.  I’m on > Zoloft 200mg for depression.  I’ve been on Neurontin but I’m not sure if it > worked and I wasn’t comfortable with the way the doc told me to take it. > TO THE GROUP:  What dosages of Neurontin work for you? > DeAnna

Response:

okey dokey, I guess THAT’S ok!? As probably EVERYONE is hearing for millionth time, I’m still in the "maybe MS stage, and I hear something new everyday, (I thank God for all the info!), and I FEEL something new everyday! The latest………my big toe is "burning" in the mornings! Anyway, thank you for the consolation!! I feel better! "Diana Calder" <d.r.calder@home> wrote in message

news:G1xI6.165583$166.3077323@news1.rdc1.bc.home.com… – Hide quoted text — Show quoted text -> Hello! > Sorry!  I didn’t mean to scare you!  Unfortunately! there is some atrophy in > the brain with M.S.  Apparently! the interferons can help slow down the > atrophy, as well as the progression of the disease. We all have some > shrinkage of the brain as we age!  It is just alittle more with M.S. > Diana > Yellowbird <ybir…@bellatlantic.net> wrote in message > news:xQoI6.14224$Aj1.5523469@typhoon2.ba-dsg.net… > > Our brains are shrinking???????????????????? I must have missed something > > somewhere?!?!?!?! Help!!!!!!!!!! Need info on this!!!!!!!! > > "Diana Calder" <d.r.calder@home> wrote in message > > news:fBjI6.160330$166.2972077@news1.rdc1.bc.home.com… > > > No! Avonex doesn’t cure pain! You are not confused.  I am awaiting to go > > on > > > Avonex though.  I hear it helps the brain from shrinking.  Thats > positive! > > > Diana > > > Shell <smin…@epix.net> wrote in message > > news:3AF1C471.B77492DB@epix.net… > > > > Hi Sylvia, > > > > Avonex doesn’t cure MS related pain, does it? > > > > I’m confused which isn’t unusual. ;>) Shell > > > > SYLV77 wrote: > > > > > Hi Diana! > > > > > Yes, I remember you!  Welcome back. > > > > > << I was > > > > > told that all this muscle and joint pain is not related to M.S.  I > for > > > one > > > > > think it is, as I do not have arthritis, rheumatoid problems or > > anything > > > of > > > > > that nature.  I have been tested.  Does anyone else constantly > suffer > > > from > > > > > these specific aches and pains? >> > > > > > Oh, yes.  I think it’s the spasms causing it.  Right now I am back > on > > > > > prednisone.  Bleah!  But the aches have gone away along with all the > > > other > > > > > symptoms that were starting to run amok.  IMHO, that means it is MS > > > related, > > > > > though I have not been tested as you have. > > > > > I have success with Valium, too.  Stretching out does help, too. > > > > > Best of luck with this!  And I hope the Avonex is the magic > treatment > > > for you! > > > > > Take care! > > > > > Sylvia

Response:

I know this is going to sound a little "sick!?" But the one good thing about this pain, until they know what’s wrong with me for sure, is that I think well if I have pain, at least it’s not likely to be ALS…….with ALS there’s not supposed to be involved?! "Diana Calder" <d.r.calder@home> wrote in message

news:3UKI6.169989$166.3163733@news1.rdc1.bc.home.com… – Hide quoted text — Show quoted text -> HI! > Sorry to hear of all what you had to endure!  I took neurontin for 5 years > of 300 mg 3 times a day.  It worked really well!  I will go back on it if I > need too. > Diana > N7dla <n7…@aol.com> wrote in message > news:20010504203248.27115.00001974@ng-fq1.aol.com… > > Hi all – I started out with a questionable faulty epidural when my > daughter was > > born.  I have had low back pain and swelling since 2 hours after my > daughter > > was born.  The docs swear nothing went "wrong" with the epidural.  They > chocked > > it up to the birthing process. > > Well that was 4 years and 3 months ago.  I have had swelling and pain > EVERYDAY > > since then.  You learn to live with it.  Fun, fun. > > Two years later after my dad died unexpectedly after a short (thankfully) > bout > > with lung cancer I was diagnosed with Chronic Fatigue.  After a couple > > blackouts, more fatigue and pain in my hands they decided to add > Fibromyalgia > > to the list. > > And the pain goes on. > > Now they have diagnosed MS from abnormal spinal tap, MIR’s with 20-25 > spots and > > 2 leg-numbing episodes. > > My doc says MS can cause pain.  I’ve not found what will make it go away > yet. > > Nothing seems to work 2 days in a row! > > What does work the most is 2 extra-strength tylenol and 1 Ultram.  I’m on > > Zoloft 200mg for depression.  I’ve been on Neurontin but I’m not sure if > it > > worked and I wasn’t comfortable with the way the doc told me to take it. > > TO THE GROUP:  What dosages of Neurontin work for you? > > DeAnna

Response:

They were going after Chronic Fatigue and Fibromylagia ONLY…… with me as well…….It was an 83 year-old ENT specialist that spent a full half hour listening to my history, reviewing my blood-work, reviewing my vestibular work-up………after hearing his son diagnosing "brain-damage" of one kind or another, (I did drugs from age 14-25, I’m forty now, got the clinical dx in March of this year.) The senior doc reassured me that brain-damage from the drug abuse should not suddenly surface after 15 years! Anyway, it was he who defied the other docs of the past, and told me………."Sounds like MS…" I told him that I had three neg MRI’s in the past and he said that doesn’t always mean you DON’T have it………so all these past years the other docs were dismissing me with dx’s of Chronic Fatigue, Fibromylagia, Panic/Anxiety……..etc……….. I hope to find out for sure at the MS Center at Cornell in June!! "N7dla" <n7…@aol.com> wrote in message

news:20010504203248.27115.00001974@ng-fq1.aol.com… – Hide quoted text — Show quoted text -> Hi all – I started out with a questionable faulty epidural when my daughter was > born.  I have had low back pain and swelling since 2 hours after my daughter > was born.  The docs swear nothing went "wrong" with the epidural.  They chocked > it up to the birthing process. > Well that was 4 years and 3 months ago.  I have had swelling and pain EVERYDAY > since then.  You learn to live with it.  Fun, fun. > Two years later after my dad died unexpectedly after a short (thankfully) bout > with lung cancer I was diagnosed with Chronic Fatigue.  After a couple > blackouts, more fatigue and pain in my hands they decided to add Fibromyalgia > to the list. > And the pain goes on. > Now they have diagnosed MS from abnormal spinal tap, MIR’s with 20-25 spots and > 2 leg-numbing episodes. > My doc says MS can cause pain.  I’ve not found what will make it go away yet. > Nothing seems to work 2 days in a row! > What does work the most is 2 extra-strength tylenol and 1 Ultram.  I’m on > Zoloft 200mg for depression.  I’ve been on Neurontin but I’m not sure if it > worked and I wasn’t comfortable with the way the doc told me to take it. > TO THE GROUP:  What dosages of Neurontin work for you? > DeAnna

Response:

N7dla <n7…@aol.com> wrote in message

news:20010504203248.27115.00001974@ng-fq1.aol.com… > And the pain goes on. > Now they have diagnosed MS from abnormal spinal tap, MIR’s with 20-25 spots and > 2 leg-numbing episodes. > My doc says MS can cause pain.  I’ve not found what will make it go away yet. > Nothing seems to work 2 days in a row!

I have an anesthesiologist who is willing to trot out the "big guns" to keep me from falling through the cracks. I recommend asking your doctor for a referral to a board certified pain specialist who isn’t shy about treatment. There is no reason to suffer needlessly if you don’t have to. It is your right to adequate treatment. Jim

Response:

In article <NsfI6.160198$166.2953…@news1.rdc1.bc.home.com>, "Diana Calder" <d.r.calder@home> writes: > Does anyone else constantly suffer from >these specific aches and pains?

Yep.  I think part of this is stiffness after waking up (my weakest time) and part is the natural course of the disease — ppms in my case.  I have this pain every day.  I take tylenol 4 and flexeril, whidh taks the edge off, but nothing really gets rid of it. Back when I was walking (badly) I thought the pain was due to my abnormal gait, but when I went to the wheelchair I found my back hurt more!  Oh please, I’m so tired of this. Sick and tired of being sick and tired Kathi

Response:

Thanks Lorraine! I think I will give the Glucosamine Sulfate a try!  My husband takes it for arthritis in his back.  I do have bursitis in my shoulder and a permanently stiff and sore neck.  So!  Who knows, maybe the glcosamine is the answer. Cheers! Diana Lorraine Reed <rr…@nucleus.com> wrote in message

news:3af2e204@news.nucleus.com… – Hide quoted text — Show quoted text -> Hi Diana.  I think that whoever told you your pain wasn’t related to MS is a > bit out-of-date.  I told my neurologist ten years ago that I had muscle > pain.  She said, being cautiously scientific, ‘I see that a lot in my > patients with MS’. I take Tylenol #3 for the muscle pain.  I think moderate > stretching exercises help as well. > I have had joint pain in my hands and this is probably not due to the MS but > rather due to osteoarthritis, which I think is quite normal for a lot of us > as we get older (I’m now 52 but the joint pains probably started, uh, say, > four years ago).  An MD recommended one gram glucosamine sulfate daily and > this has almost completely eliminated the joint pains.  Glucosamine is used > for osteoarthritis.  This may not be relevant to you, but I thought I’d > throw this info in…just in case.  It’s available over-the-counter and I’ve > not noticed any side effects. > Take care.  Lorraine. > Diana Calder <d.r.calder@home> wrote in message > news:NsfI6.160198$166.2953732@news1.rdc1.bc.home.com… > > Hi all! > > Well! some of you might remember me.  I posted many months ago and then > > became a lurker once again only to post here and there.  Well! I have > again > > decided to come out of the closet.  I am a 46 year old female diagnosed > with > > M.S. in 1994.  I have R/R and  have been on LTD for 3 years come this > July. > > I am still ambulatory.  I have been on Betaseron, Copaxone, and Rebif., > all > > which have not agreed with me in one way or the other.  I am now waiting > to > > go on Avonex!  my last stab at one of these drugs (no pun intended).  I > take > > Effexor and a bunch of advil for muscle and joint pain.  Cognitively, I > have > > problems! word searching, saying the wrong thing, memory loss, etc.,   I > was > > told that all this muscle and joint pain is not related to M.S.  I for one > > think it is, as I do not have arthritis, rheumatoid problems or anything > of > > that nature.  I have been tested.  Does anyone else constantly suffer from > > these specific aches and pains? > > Cheers > > Diana

Response:

Hi Diana.  I think that whoever told you your pain wasn’t related to MS is a bit out-of-date.  I told my neurologist ten years ago that I had muscle pain.  She said, being cautiously scientific, ‘I see that a lot in my patients with MS’. I take Tylenol #3 for the muscle pain.  I think moderate stretching exercises help as well. I have had joint pain in my hands and this is probably not due to the MS but rather due to osteoarthritis, which I think is quite normal for a lot of us as we get older (I’m now 52 but the joint pains probably started, uh, say, four years ago).  An MD recommended one gram glucosamine sulfate daily and this has almost completely eliminated the joint pains.  Glucosamine is used for osteoarthritis.  This may not be relevant to you, but I thought I’d throw this info in…just in case.  It’s available over-the-counter and I’ve not noticed any side effects. Take care.  Lorraine. Diana Calder <d.r.calder@home> wrote in message

news:NsfI6.160198$166.2953732@news1.rdc1.bc.home.com… – Hide quoted text — Show quoted text -> Hi all! > Well! some of you might remember me.  I posted many months ago and then > became a lurker once again only to post here and there.  Well! I have again > decided to come out of the closet.  I am a 46 year old female diagnosed with > M.S. in 1994.  I have R/R and  have been on LTD for 3 years come this July. > I am still ambulatory.  I have been on Betaseron, Copaxone, and Rebif., all > which have not agreed with me in one way or the other.  I am now waiting to > go on Avonex!  my last stab at one of these drugs (no pun intended).  I take > Effexor and a bunch of advil for muscle and joint pain.  Cognitively, I have > problems! word searching, saying the wrong thing, memory loss, etc.,   I was > told that all this muscle and joint pain is not related to M.S.  I for one > think it is, as I do not have arthritis, rheumatoid problems or anything of > that nature.  I have been tested.  Does anyone else constantly suffer from > these specific aches and pains? > Cheers > Diana

Response:

<sigh>  Why is it allot of docs claim being electrocuted to death from the inside out is NOT painful? — Take Care : ) JulieD und KEINE EIER!!!