Talk Cancer

Question:

Hi Laurel, New here myself.  39 yr old female.  Cervical to lymph to lung.  Waiting on a ct result after five rounds of Ifosfamide.  After the first 2, the lung nodules decreased significantly.  Feel pretty positive, but I’m also a realist. Good your chemo’s going ok.  This is my second year of it, and I KNOW it’s helped me, though it can obviously be rough. Last year was Taxol/Cisplatin and then lung surgery.  What kind of chemo are you getting? Never give up! – Hide quoted text — Show quoted text – Hi all,      I’m new here, well almost.  I did post to a grand child who had a grandma with the sme diagnosis as I.      I’m Laurel, have stage 4 adenocarcenoma 5 CM dia in my right lung . has spread to my sacrum with a 3 CM tumor and probably to my left adrenal gland.  I also have a small melanoma on my face, which kept me out of a nationwide cancer study.  Am 63 year old male.  Quit smoking 16 years ago.  Came down with pneumonia end of Aug.  They treated it with antibiotics for a week with no success and started further tests, resulting in the diagnosis.  I started Chemo Friday at UW Madison (WI) clinics.  Hasn’t been bad (yet), and hope it won’t.      I know the odds aren’t real good, like 10 months average with treatment, but I feel I’m going to beat this and gain more and more time.  I’m pretty healthy otherwise.     Would appreciate corresponding with any one with a simmilar diagnosis.  We could compare notes, ideas, whatever.  Thanks. Laurel

Response:

Hi all,      I’m new here, well almost.  I did post to a grand child who had a grandma with the sme diagnosis as I.      I’m Laurel, have stage 4 adenocarcenoma 5 CM dia in my right lung . has spread to my sacrum with a 3 CM tumor and probably to my left adrenal gland.  I also have a small melanoma on my face, which kept me out of a nationwide cancer study.  Am 63 year old male.  Quit smoking 16 years ago.  Came down with pneumonia end of Aug.  They treated it with antibiotics for a week with no success and started further tests, resulting in the diagnosis.  I started Chemo Friday at UW Madison (WI) clinics.  Hasn’t been bad (yet), and hope it won’t.      I know the odds aren’t real good, like 10 months average with treatment, but I feel I’m going to beat this and gain more and more time.  I’m pretty healthy otherwise.     Would appreciate corresponding with any one with a simmilar diagnosis.  We could compare notes, ideas, whatever.  Thanks. Laurel

Response:

- Hide quoted text — Show quoted text – Hi all,      I’m new here, well almost.  I did post to a grand child who had a grandma with the sme diagnosis as I.      I’m Laurel, have stage 4 adenocarcenoma 5 CM dia in my right lung . has spread to my sacrum with a 3 CM tumor and probably to my left adrenal gland.  I also have a small melanoma on my face, which kept me out of a nationwide cancer study.  Am 63 year old male.  Quit smoking 16 years ago.  Came down with pneumonia end of Aug.  They treated it with antibiotics for a week with no success and started further tests, resulting in the diagnosis.  I started Chemo Friday at UW Madison (WI) clinics.  Hasn’t been bad (yet), and hope it won’t.      I know the odds aren’t real good, like 10 months average with treatment, but I feel I’m going to beat this and gain more and more time.  I’m pretty healthy otherwise.     Would appreciate corresponding with any one with a simmilar diagnosis.  We could compare notes, ideas, whatever.  Thanks. Laurel

The best place to compare notes would be with others on an e-mail discussion group (Lung-Onc) sponsored by ACOR. Go to http://www.medinfo.org    and choose Lists/Interact/ from which section you can subscribe to the list.   Good luck. Georgia

Response:

Hi people, I am Chelle. I wish I had known about this group a couple of months ago. What a wealth of knowledge and experience you have to share. I was diagnosed with osteosarcoma in April. Encapsulated in my right femur. Well the chemo has ended and I’m getting stronger. I have a lot of questions about starting life again and those who have done it know better than any one else. Would like to hear from other osteo folks. Concern now is self image (pretty rotten I’m afraid), fear of reccurence (even though I’m assured I’m ok) and prosthetics successes and failures (especially hip Thanks and God Bless, Chelle Cochran Chelle Cochran

Response:

Dear Chelle Well the chemo has ended and I’m getting stronger.

Go succeeding!!! Concern now is self image (pretty rotten I’m afraid), fear of reccurence (even though I’m assured I’m ok) ….

I’m afraid I can not say anything about fear about recurrence. I hope in the next future you’ll find enough stimulations and hope and good things to love again to live… and one day gain again the trust you had in your body! About the self-image: I want to reproduce the poem I found on a BMTsite on Internet. I found it a beautiful poem, applicable to all ‘patients’. And want it to dedicate to you, and also everybody who needs it. My doctor put it his office and in his waiting-room, we are going or went to a difficult time. maybe now we are stronger, maybe we are not. But it was ‘our hero’s role’!! Unready heroes A lifetime of steady, schooling: alphabet-roles, number recital history’s dates, cake-baking, fuse-fixing, slow-dancing how we are born and grow and age and die, didn’t ready you for the naked facts of our Consent form A lifetime of educated modesty: closing your bedroom door, covering your body, segregating girls from boys, separate facilities for men and women, learned euphemisms for your body’s functions, didn’t ready you for our free inspection of your daily portapotti. A lifetime of careless risk-taking: climbing trees, jay walking streets, diving rock pools, floating to sea, driving fast cars, flying airplanes, rash roller coaster thrill seeking, didn’t ready you for the chill reality of this life challenge. A lifetime of practicing precaution: sheltering from harm, not overdoing it, running in the middle of the pack, getting by with the least amount of effort, okay grades without too much distinction, didn’t ready you for our accolades of this your hero’s role. John Graham Pole MD University of Florida Prof. of Pediatrics Christi message created by UDABERRI,

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