Talk Cancer

Question:

Greetings… My mother was just recently told (after a hospital stay for a broken leg) her leg had cancerous elements to it.  Unfortunately, the doctors seem rather tight lipped about the details OR my mother is keeping info from me.  Regardless…my web searching has taught me that the type of cancer she has is called chromosarcoma I believe?  I know nothing of it’s severity, but I have read mixed information on the disease.  Some sources claim that amputation is the only reliable way to deal with the disease, almost regardless of it’s stage.  Other sources say that chemo and radio treatment are usually positive ways of dealing with it..  Does anyone here have any experience or comments on the situation from personal experience?   This is rather hard on me seeing as how, like many illnesses, it simply decended from out of nowhere on us. —

Response:

- Hide quoted text — Show quoted text – Greetings… My mother was just recently told (after a hospital stay for a broken leg) her leg had cancerous elements to it.  Unfortunately, the doctors seem rather tight lipped about the details OR my mother is keeping info from me.  Regardless…my web searching has taught me that the type of cancer she has is called chromosarcoma I believe?  I know nothing of it’s severity, but I have read mixed information on the disease.  Some sources claim that amputation is the only reliable way to deal with the disease, almost regardless of it’s stage.  Other sources say that chemo and radio treatment are usually positive ways of dealing with it..  Does anyone here have any experience or comments on the situation from personal experience?   This is rather hard on me seeing as how, like many illnesses, it simply decended from out of nowhere on us. —

Hi my name is John Davis and I too have a chondrosarcoma and I was told that the only way to get rid of it was to lopp off my leg.Well I don’t have to say how I felt at the time, but I almost let them do it.Thanl God for me being the way I am because I started doing some research on it.At first things looked pretty bad[especially since I had decided to keep the leg even if it ment dying] and then I did what you did.I put out a letter on the internet and lo and behold someone responded and sent me a web site about neutron radiation therapy.What pisses me off though is that I have seen some pretty high powered doctors and not one of them mentioned this type of radiation to me.All I had heard was that chondrosarcoma is radio resistent[meaning that conventional radiation won't work on it] and that since it was well differentiated,chemo wouldn’t work eithe.I am sending you a web sit and I want you to pull it up. read everything it says and call them.I did.Ask questions.There are only three[3] places in the country that do this.one is in Detroit, Mich. one in Chicago, Ill,[ the one on the web site is in Chicago, it is called Fermilab] and one is in Seattle, Wash at the Univ Med. Center.I am going to Washington because my research has told me that they have the most experience with  it. Here is the web site address, just click on it http://adwww.fnal.gov/www/ntf/visitor_info.html good luck and let me know how it works out.If the link won’t work then go to Snap and do a search for Fermilab.And one more thing ,it is RIGHT ON that you are looking out for your mom.Moms are tops in my book.Good luck and god bless                             John Davis    P.S. my e-mail add. is

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