Talk Cancer

Question:

I’m already done wasting your time and mine.

Did I miss something somewhere?  She asked about getting calls form the ACS and now she’s all defensive. Am I just dense? …lisa (confused)

Response:

she had also written about the great medical/pharmaceutical "conspiracy" to prevent patients from getting well so they could make more $, and I had suggested she devote her efforts to finding a suitable treatment for herself instead of a one-woman conspiracy sniffer-outter crusade.  apparenltys, someone wrote to her via email and said something about "dont’ banter with crosem" whatever that means.  she also wrote to me privately, but it was the same message she psoted, and I wrote back about teh same info. so, there you have it…

| | I’m already done wasting your time and mine. | | Did I miss something somewhere?  She asked about getting calls form the ACS and | now she’s all defensive. | | Am I just dense? | | …lisa (confused)

Response:

Thanks.  I must have misread her post (although I tend to tune out when I start feeling that the old "conspiracy" theory is surfacing – kind of like ignoring screaming children). …lisa

Response:

I’m not offended at all.  Do just as you wish.

|

| Please accept this opinion of mine with the idea that I am trying to help | you, not criticize you…but I wonder if you are directing energy at | topics | such as the great AMA/ACS/medical establishment conspiracy that might be | more productively employed considering your treatment.  You, at this time, | do not have the "luxury" of re-organziing medical care in the USA…just | look out for yourself to get the suitable treatment for your condition. | The standard treatments are the standards because they show the best | results… | If you don’t wish to have anything to do with the ACS, tell them so.  I | didn’t have any visitor or phone call from them, altho they say they did | visit me, I must have been half asleep or something, since I recall it | not! | | I’m curious, how does ACS select their survivors who call patients?  I | was | | referred | | to them by my surgeon/hospital after surgery.  ACS rep called me. | Referral | | was on my release form. How does that work?  Will you get a call only | from | a | | patient | | who was treated at an institution or by a doc supporting  ACS? | | | | Susan M | | | | | | I pretty much expected this comment regarding my focus.  Sorry if it offends | you. | Someone other than yourself, probably an activist, might be able to answer | my question. | Activists are just one type of individual who question the sources of | medical info, | paving the road to better treatments and risking their health to do so. |  Please respect those individuals…Unfortunately | I have lots of reason not to trust the medical field.  Start with | misdiagnosis | of six years by 12 docs for a common disabling disease. This has happened to | many others | and is still occurring daily, despite years of grassroots efforts.   I | suffered a lot | because of poor info, a lack of familiarity with the medical system, |  so now I ask alot of questions, wouldn’t you?   If you work in the medical | field you can’t appreciate being on the outside of such a system, | what it takes to get the best of treatment quickly when you’re very ill. | I feel for the uneducated and poor. | | Now you can tell me how I shouldn’t be so bitter, since it’s also a drain on | my health. |  My focus is my choice, my perspective is not yours. | | Please forget those private emails folks, telling me not to banter further | with crosem, | I’m already done wasting your time and mine. | | Susan M. | | |

Response:

I didn’t have any visitor or phone call from them, altho they say they did visit me,

Two wonderful old ladies from the ACS visited me in the hospital the day after my mastectomy.  They offered services, which I really didn’t need, and gave me a soft temporary prosthesis, which I gladly took. I thought the visit was very nice. …lisa

Response:

– Hide quoted text — Show quoted text – Please accept this opinion of mine with the idea that I am trying to help you, not criticize you…but I wonder if you are directing energy at topics such as the great AMA/ACS/medical establishment conspiracy that might be more productively employed considering your treatment.  You, at this time, do not have the "luxury" of re-organziing medical care in the USA…just look out for yourself to get the suitable treatment for your condition. The standard treatments are the standards because they show the best results… If you don’t wish to have anything to do with the ACS, tell them so.  I didn’t have any visitor or phone call from them, altho they say they did visit me, I must have been half asleep or something, since I recall it not! | I’m curious, how does ACS select their survivors who call patients?  I was | referred | to them by my surgeon/hospital after surgery.  ACS rep called me. Referral | was on my release form. How does that work?  Will you get a call only from a | patient | who was treated at an institution or by a doc supporting  ACS? | | Susan M | |

I pretty much expected this comment regarding my focus.  Sorry if it offends you. Someone other than yourself, probably an activist, might be able to answer my question. Activists are just one type of individual who question the sources of medical info, paving the road to better treatments and risking their health to do so.  Please respect those individuals…Unfortunately I have lots of reason not to trust the medical field.  Start with misdiagnosis of six years by 12 docs for a common disabling disease. This has happened to many others and is still occurring daily, despite years of grassroots efforts.   I suffered a lot because of poor info, a lack of familiarity with the medical system,  so now I ask alot of questions, wouldn’t you?   If you work in the medical field you can’t appreciate being on the outside of such a system, what it takes to get the best of treatment quickly when you’re very ill. I feel for the uneducated and poor. Now you can tell me how I shouldn’t be so bitter, since it’s also a drain on my health.  My focus is my choice, my perspective is not yours. Please forget those private emails folks, telling me not to banter further with crosem, I’m already done wasting your time and mine. Susan M. – Hide quoted text — Show quoted text –

Response:

I’m curious, how does ACS select their survivors who call patients?  I was referred to them by my surgeon/hospital after surgery.  ACS rep called me. Referral was on my release form. How does that work?  Will you get a call only from a patient who was treated at an institution or by a doc supporting  ACS? Susan M

Response:

I’m curious, how does ACS select their survivors who call patients?  

This may vary locally.  IIRC, around here, people volunteer and are trained to do this, and someone (the cancer center?) tries to pick from the volunteer list someone who’s semi-similar to the patient in age, etc. Ann T.

Response:

Please accept this opinion of mine with the idea that I am trying to help you, not criticize you…but I wonder if you are directing energy at topics such as the great AMA/ACS/medical establishment conspiracy that might be more productively employed considering your treatment.  You, at this time, do not have the "luxury" of re-organziing medical care in the USA…just look out for yourself to get the suitable treatment for your condition. The standard treatments are the standards because they show the best results… If you don’t wish to have anything to do with the ACS, tell them so.  I didn’t have any visitor or phone call from them, altho they say they did visit me, I must have been half asleep or something, since I recall it not!

| I’m curious, how does ACS select their survivors who call patients?  I was | referred | to them by my surgeon/hospital after surgery.  ACS rep called me. Referral | was on my release form. How does that work?  Will you get a call only from a | patient | who was treated at an institution or by a doc supporting  ACS? | | Susan M | |

Response: