Categories: Prostate Cancer

Question:

Congratulations. Side effects of radiation are a hot topic here, so any information you want to share would be read with interest by quite a few people. jimhoney – Hide quoted text — Show quoted text – Hello Everyone, I still lurk 3x a week and keep updated. To keep those that have been with me through the PCa for the last 3 years my psa test came back at <0.01 today. I again thank you for your support and friendship. Dave P Age at Diagosis 46 Regular Physical Exam 6.30.02 = PSA 4.6 Free PSA 8% Biopsy 8.1.02 =  1 core out of 16 positive for PCa <5% of core TC1 Gleason  3+3=6 RP 10.15.02 Path Report = Positive Margin Right Apex 4mm, no lymph node invasion, no seminal vesicle involvement Cancer found throughout the prostate Gleason 3+4=7 12.04.02    PSA Test <0.1 02.24.03.  PSA Test                 0.3 03.01.03   PSA Test confirming 0.3 03.24.03   Bone Scan, MRI = Negative 03.31.03   Started Salvage Radiation 68.400 gy – 40 Treatments – IMRT 7 Angles 05.23.03   Ended  Salvage Radiation 07.01.03 PSA =   0.04 10.01.03 PSA = <0.01 04.01.04 PSA = <0.01 10.26.04 PSA = <0.01 04.26.05 PSA = <0.01

Response:

Congratulations on the low PSAs after salvage radiation.  Besides your similar name (some people have confused Dave P with Dave Perry) I too had a positive margin although there was some question about whether there was any penetration of a "well focused 2mm tumor"  through the edge of the specimen or just abutting the edge.  So far after 2 years, PSAs still <0.1.  Of course, if my PSA ever increases I’ll follow in your path with hopefully the same success you’ve had. All the best, Dave Perry

Response:

Congratulations on your two year mark. Looks like you fried anything that was lurking around in the area. That is such good news. Bev

– Hide quoted text — Show quoted text – Hello Everyone, I still lurk 3x a week and keep updated. To keep those that have been with me through the PCa for the last 3 years my psa test came back at <0.01 today. I again thank you for your support and friendship. Dave P Age at Diagosis 46 Regular Physical Exam 6.30.02 = PSA 4.6 Free PSA 8% Biopsy 8.1.02 =  1 core out of 16 positive for PCa <5% of core TC1 Gleason  3+3=6 RP 10.15.02 Path Report = Positive Margin Right Apex 4mm, no lymph node invasion, no seminal vesicle involvement Cancer found throughout the prostate Gleason 3+4=7 12.04.02    PSA Test <0.1 02.24.03.  PSA Test                 0.3 03.01.03   PSA Test confirming 0.3 03.24.03   Bone Scan, MRI = Negative 03.31.03   Started Salvage Radiation 68.400 gy – 40 Treatments – IMRT 7 Angles 05.23.03   Ended  Salvage Radiation 07.01.03 PSA =   0.04 10.01.03 PSA = <0.01 04.01.04 PSA = <0.01 10.26.04 PSA = <0.01 04.26.05 PSA = <0.01

Response:

Dave P, Another point scored forthe good guys! Did you get much in the way of side effects from salvage radiation? I always wonder about it in case I ever have to get it. I was RP’d 2/11/04. So far so good. But the decision on possible future treatment is a frequent day dream topic. Steve U

Response:

Dave Perry, Your in good health and won’t experience a rise. After two years and still <0.1 – I would bet a great number of Benjamins on that one. About Radiation: No serious long term side effects. No long term side effects that are bothersome. Definetly had short term side effects, burning on urination and especially bowel movements, was tired at the end of the week and became impotent for three months. That all went away after a couple of months. Feeling great and lucky now. I exercised, developed some good nutrition habits and drank plenty of fluids and that helped greatly. Tried to keep a positive attitude and outlook which fought off depression. It was a breeze compared the the surgery RP. Thanks for all your support.

– Hide quoted text — Show quoted text – Hello Everyone, I still lurk 3x a week and keep updated. To keep those that have been with me through the PCa for the last 3 years my psa test came back at <0.01 today. I again thank you for your support and friendship. Dave P Age at Diagosis 46 Regular Physical Exam 6.30.02 = PSA 4.6 Free PSA 8% Biopsy 8.1.02 =  1 core out of 16 positive for PCa <5% of core TC1 Gleason  3+3=6 RP 10.15.02 Path Report = Positive Margin Right Apex 4mm, no lymph node invasion, no seminal vesicle involvement Cancer found throughout the prostate Gleason 3+4=7 12.04.02    PSA Test <0.1 02.24.03.  PSA Test                 0.3 03.01.03   PSA Test confirming 0.3 03.24.03   Bone Scan, MRI = Negative 03.31.03   Started Salvage Radiation 68.400 gy – 40 Treatments – IMRT 7 Angles 05.23.03   Ended  Salvage Radiation 07.01.03 PSA =   0.04 10.01.03 PSA = <0.01 04.01.04 PSA = <0.01 10.26.04 PSA = <0.01 04.26.05 PSA = <0.01

Response:

Hello Everyone, I still lurk 3x a week and keep updated. To keep those that have been with me through the PCa for the last 3 years my psa test came back at <0.01 today. I again thank you for your support and friendship. Dave P Age at Diagosis 46 Regular Physical Exam 6.30.02 = PSA 4.6 Free PSA 8% Biopsy 8.1.02 =  1 core out of 16 positive for PCa <5% of core TC1 Gleason  3+3=6 RP 10.15.02 Path Report = Positive Margin Right Apex 4mm, no lymph node invasion, no seminal vesicle involvement Cancer found throughout the prostate Gleason 3+4=7 12.04.02    PSA Test <0.1 02.24.03.  PSA Test                 0.3 03.01.03   PSA Test confirming 0.3 03.24.03   Bone Scan, MRI = Negative 03.31.03   Started Salvage Radiation 68.400 gy – 40 Treatments – IMRT 7 Angles 05.23.03   Ended  Salvage Radiation 07.01.03 PSA =   0.04 10.01.03 PSA = <0.01 04.01.04 PSA = <0.01 10.26.04 PSA = <0.01 04.26.05 PSA = <0.01

Response:

2

0 comments (23 views)
Categories: Cancer Cells

Question:

On Thu, 26 Sep 2002 07:05:46 -0400, "David & Sherri Calladine" <callad…@toast.net> wrote in alt.support.mult-sclerosis: >Has there >been a person who has been cured with stem cells

Craig Garrison, a member of this group, underwent autologous stem treatment. This is taking a person’s own stem cells, killing their immune system and then re-introducing the stem cells. He feels that the procedure has cured his MS.  See http://groups.google.com/groups?hl=en&lr=&ie=UTF-8&threadm=3D299A17.5… for his answer to my question about being cured.  Unfortunately, the damage already caused by the MS was not reversed.  Craig’s story is on Paul Jones’ web site at http://www.mult-sclerosis.org/ . — From: watchman (watch…@nucleus.com) [Now ironjust...@aol.com] Newsgroups: alt.support.thyroid Date: 2002-01-12 15:56:30 PST "Look lady .. if you don’t know what you are talking about ‘medically’ .. then stay out of it .. The man has had three miscarriages/spontaneous abortions."

Response:

On Thu, 26 Sep 2002 14:18:01 +0100, in alt.support.mult-sclerosis,Paul Jones <jones.p…@btconnect.com> wrote: – Hide quoted text — Show quoted text ->David & Sherri Calladine wrote: >> Everyday there are new articles about people who are against Stem Cell >> therapy.  We don’t here too much about people who agree with it.  For some >> reason the negative reports seem to out weigh the postive ones.  Has there >> been a person who has been cured with stem cells or are they still working >> on mice?!! >> We need to find a cure for all of these dreaded diseases – I am so tired of >> taking medicine for the tingling and for the side effects of my daily shots >> of  Copaxone.  When are they suppose to have a cure? >I think we have to be patient here. This is a technology in >its infancy and it will take a while to perfect. There is >much that is still to be understood about how stem cells >work and also much to be understood about how MS works.

This is important to remember (hey, I am actually being serious here …. I’ll try not to let it happen again). Imagine if they were to try to use stem cells to cure cancer by injecting stem cells and all that happened was that the stem cells differentiated into cancer cells. Having said that, *I* am far from convinced that this or most of the other projected therapies on the horizon will be effective at curing MS.  This is especially true because they know so little about what actually causes MS.  Perhaps, if/when they do understand the mechanisms of MS, any treatment or cure that comes out of that understanding will be totally different from anything that they are even considering looking at, today. Tomorrow, though, should be *very* interesting. — "Who we are and who we become depends, in part, on whom we love." — "A General Theory Of Love"  Thanks, Mom ______________________________________________________________ Glen Appleby  gl…@armory.com <HTTP://www.armory.com/~glena/>

Response:

Everyday there are new articles about people who are against Stem Cell therapy.  We don’t here too much about people who agree with it.  For some reason the negative reports seem to out weigh the postive ones.  Has there been a person who has been cured with stem cells or are they still working on mice?!! We need to find a cure for all of these dreaded diseases – I am so tired of taking medicine for the tingling and for the side effects of my daily shots of  Copaxone.  When are they suppose to have a cure?

Response:

  That’s a wonderful point you brought up.I’m wonderin the same thing. I think that’s why so many are against stem cell therapy. There’s still no cure…Arggg!!!!!

Response:

David & Sherri Calladine wrote: > Everyday there are new articles about people who are against Stem Cell > therapy.  We don’t here too much about people who agree with it.  For some > reason the negative reports seem to out weigh the postive ones.  Has there > been a person who has been cured with stem cells or are they still working > on mice?!! > We need to find a cure for all of these dreaded diseases – I am so tired of > taking medicine for the tingling and for the side effects of my daily shots > of  Copaxone.  When are they suppose to have a cure?

I think we have to be patient here. This is a technology in its infancy and it will take a while to perfect. There is much that is still to be understood about how stem cells work and also much to be understood about how MS works. Stem cell therapy has been used in Parkinson’s disease in humans with mixed results. Despite this, the work has been yet another proof of principle and, as such, is hopeful. The best present hope for stem cell therapy in MS comes from oligodendrocyte precursor cells which may come from embryos, may be autologous (i.e. derived from the people with MS themselves) or may come from autologous Schwann cells. Perhaps it will take too long for many of us to benefit but should we deny potential therapies to future generations of people with MS or other diseases? Despite assertions to the contrary, many researchers are working towards treating this disease more effectively, arresting its progress or reversing it. There are problems with research and competing interests, but researchers aren’t all callously serving their own self-interest – most are just normal people and some are very dedicated. Their project is a difficult one – we should cut them some slack and not blame them for our disease. Some people have issues with the ethics of embryonic stem cell research and animal experimentation. These are different questions altogether. Take care, Paul All About MS – the latest MS News and Views http://www.mult-sclerosis.org/

Response:

0 comments (5 views)
Categories: Cancer Treatment

Question:

Lance Armstrong is not just an athlete, he is superman… http://www.msnbc.com/news/788695.asp Ken Parker Runner’s Web <http://www.runnersweb.com A running and Triathlon Resource Portal

Response:

i wish we could all get to a point where we can admit to lance’s freakish abilities and supernatural physiology, and drop the drug innuendo.  he has got to be the most testd athlete in sports. the french government conducted a year long investigation.  the guy is just gifted with a body that works in a way that makes him able to ride harder and longer than others.  now if that came from his treatment for cancer,  would you have taken those odds? you would have had to start with great cycling athletic ability,  take the 1 in 10 chance that you would survive the treatment and then systematically kill off your body to cure the cancer, lose a testicle etc… if that was the plan, i think lance would need better advisors.  i think that it is time to tr to drop a little of the cycnism and try to appreciate what we are all getting to witness. todd sandiego

Response:

0 comments (1 views)
Categories: Cancer Chemotherapy

Question:

my mother was diagnosed with cancer a few years ago and went thru chemotherapy then but hasnt seen a doctor since… until very recently.  the doctor told her her blood has a very high SED count   and i am trying to do some research on what SED means.  any assistance will be appreciated

Response:

He could be talking about a Sedimentation rate (Erythrocyte Sedimentation Rate).  This is a non-specific test which will      be elevated i n the case of inflamation or infection could be in response to the chemo she is receiving Marsha

– Hide quoted text — Show quoted text – my mother was diagnosed with cancer a few years ago and went thru chemotherapy then but hasnt seen a doctor since… until very recently. the doctor told her her blood has a very high SED count   and i am trying to do some research on what SED means.  any assistance will be appreciated

Response:

as promised     assistance is greatly appreciated :)    thank you marsha

– Hide quoted text — Show quoted text – He could be talking about a Sedimentation rate (Erythrocyte Sedimentation Rate).  This is a non-specific test which will      be elevated i n the case of inflamation or infection could be in response to the chemo she is receiving Marsha my mother was diagnosed with cancer a few years ago and went thru chemotherapy then but hasnt seen a doctor since… until very recently. the doctor told her her blood has a very high SED count   and i am trying to do some research on what SED means.  any assistance will be appreciated

Response:

0 comments (13 views)
Categories: Prognosis Cancer

Question:

Brenda: I have thyroid cancer and am scheduled for surgery in a few weeks followed by Radioactive Iodine treatment.  I am confused why you are electing not to have surgery.  This is a very treatable cancer with a very high total recovery rate with the surgery and follow up iodine treatment.  If you choose not to have surgery, then eventually the cancer can kill you.  Just my two cents, but I am in the same boat that you are. TLG Chicago – Hide quoted text — Show quoted text – Is anyone dealing with thyroid cancer and electing NOT to have surgery or radiation treatment?  If so, what are you doing?  I’m thinking about taking essiac herbal tea. Wondering if anyone else is having sucess with alternative methods.  Thanks. Before you buy.

Response:

Is anyone dealing with thyroid cancer and electing NOT to have surgery or radiation treatment?  If so, what are you doing?  I’m thinking about taking essiac herbal tea. Wondering if anyone else is having sucess with alternative methods.  Thanks. Before you buy.

Response:

I do not have that type of cancer, or any type for that matter..just experienced it with my child. I"ll just say this…if you elect to do nothing medically about it, I fear you are signing your own death sentence. With a type of cancer such as this, that is so treatable…I would do anything, to encourage you to try what the docs are suggesting to you. Drink all the darn tea you want…along with surgery and treatment. I know several people that have long survived this cancer..I don’t know..I guess I"m wishing we had had such  a prognosis….I can’t even imagine why you wouldn’t….but you aren’t me.  :) Blessings…. Robin…mom to hannah,aka "wild thing".1/17/98 – 9/1/00  wife to E….the other love of my life.

Response:

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Categories: Skin Cancer

Question:

"AA" <a…@columbia.edu> wrote in message

news:bh8m62$pj8$1@newsmaster.cc.columbia.edu… – Hide quoted text — Show quoted text -> Hello all, > I have been recently diagnosed with Sleep Apnea having 49.5 episodes every > hour. So following my doctors suggestion, I started using CPAP couple of > weeks ago. Since I am new to this, I would like to get some maintenance tips > for the CPAP equipment: > Following are the recommendations made in the manual: > 1. Wash the mask and the plastic tube every day. > 2. Wash the sponge filter every two weeks. > 3. Replace the white filter every month. > 4. Use distilled water as oppose to tap water. > Should I strictly following the above recommendations? Can I use the mineral > water found in the supermarket? > Additionally, I would like to know which mask is most commonly used. The one > I have is a small mask the covers my nose. I am getting used to it but > sometimes it leaves a mark on my face in the morning. > Any feedback will be greatly appreciated. > Thanks

Welcome to the ranks of the Hoover Heads. I use a Breeze nasal pillow system (check cpapman.com for pics). I wash the pillows and the "plenum shell" that the pillows fit into (and that I exhale into) daily.  I also rinse the humidifier daily. I wash everything (humidifier, hoses) once a week in soapy water (no Lanoline — it eats silicone.  I use Sun Lite). Follow mfr recommendations for filters.  You really don’t want to get grit in your blower.  You also don’t want to create a restriction on the air intake (as would happen with dirty filters). Distilled water has been a big topic here (check archives).  I’m fortunate enough to live in an area with soft water (Lake Erie). I just use tap water. So far no problems.  (3 years).  If you have hard water, don’t use it.  I’m very leary of bottled water (not distilled).  Too many studies have indicated that some brands have real problems.  I’d trust tap or distilled water only. (But that’s just my opinion). Paul R

Response:

On Mon, 11 Aug 2003 14:10:09 -0400, AA wrote: >Following are the recommendations made in the manual: >1. Wash the mask and the plastic tube every day.

You can probably get by with less depending on your grunge tolerance. Don’t ask when I last washed mine. :-) >2. Wash the sponge filter every two weeks. >3. Replace the white filter every month.

Your blower isn’t my blower, so I wouldn’t know. I do do mine per recommendations. >4. Use distilled water as oppose to tap water.

Definitely distilled water… NOT mineral water, spring water, etc.

Response:

"AA" <a…@columbia.edu> wrote in message

news:bh8m62$pj8$1@newsmaster.cc.columbia.edu… – Hide quoted text — Show quoted text -> Hello all, > I have been recently diagnosed with Sleep Apnea having 49.5 episodes every > hour. So following my doctors suggestion, I started using CPAP couple of > weeks ago. Since I am new to this, I would like to get some maintenance tips > for the CPAP equipment: > Following are the recommendations made in the manual: > 1. Wash the mask and the plastic tube every day. > 2. Wash the sponge filter every two weeks. > 3. Replace the white filter every month. > 4. Use distilled water as oppose to tap water. > Should I strictly following the above recommendations? Can I use the mineral > water found in the supermarket? > Additionally, I would like to know which mask is most commonly used. The one > I have is a small mask the covers my nose. I am getting used to it but > sometimes it leaves a mark on my face in the morning. > Any feedback will be greatly appreciated. > Thanks

Take that 4. refers to water for use in your humidifier? I wash my stuff with plain tap water, and I’m assuming most folks do too! HTH Kit — To reply replace nospam with kamuzz

Response:

Definitely follow the distilled water one. The filters are a good idea too. Dittio the mask, probably. Very few folks clean the hoses daily (or even weekly, for that matter!) regards, eric pearson db2e…@nospammindspring.com – Hide quoted text — Show quoted text -On Mon, 11 Aug 2003 14:10:09 -0400, "AA" <a…@columbia.edu> wrote: >Hello all, >I have been recently diagnosed with Sleep Apnea having 49.5 episodes every >hour. So following my doctors suggestion, I started using CPAP couple of >weeks ago. Since I am new to this, I would like to get some maintenance tips >for the CPAP equipment: >Following are the recommendations made in the manual: >1. Wash the mask and the plastic tube every day. >2. Wash the sponge filter every two weeks. >3. Replace the white filter every month. >4. Use distilled water as oppose to tap water. >Should I strictly following the above recommendations? Can I use the mineral >water found in the supermarket? >Additionally, I would like to know which mask is most commonly used. The one >I have is a small mask the covers my nose. I am getting used to it but >sometimes it leaves a mark on my face in the morning. >Any feedback will be greatly appreciated. >Thanks

Response:

Thanks :-)

Response:

- Hide quoted text — Show quoted text -AA wrote: > Hello all, > I have been recently diagnosed with Sleep Apnea having 49.5 episodes every > hour. So following my doctors suggestion, I started using CPAP couple of > weeks ago. Since I am new to this, I would like to get some maintenance tips > for the CPAP equipment: > Following are the recommendations made in the manual: > 1. Wash the mask and the plastic tube every day. > 2. Wash the sponge filter every two weeks. > 3. Replace the white filter every month. > 4. Use distilled water as oppose to tap water. > Should I strictly following the above recommendations? Can I use the mineral > water found in the supermarket? > Additionally, I would like to know which mask is most commonly used. The one > I have is a small mask the covers my nose. I am getting used to it but > sometimes it leaves a mark on my face in the morning. > Any feedback will be greatly appreciated. > Thanks

Check recent threads and archives.

Response:

"AA" <a…@columbia.edu> wrote in message

news:bh8m62$pj8$1@newsmaster.cc.columbia.edu… – Hide quoted text — Show quoted text -> Hello all, > I have been recently diagnosed with Sleep Apnea having 49.5 episodes every > hour. So following my doctors suggestion, I started using CPAP couple of > weeks ago. Since I am new to this, I would like to get some maintenance tips > for the CPAP equipment: > Following are the recommendations made in the manual: > 1. Wash the mask and the plastic tube every day. > 2. Wash the sponge filter every two weeks. > 3. Replace the white filter every month. > 4. Use distilled water as oppose to tap water. > Should I strictly following the above recommendations? Can I use the mineral > water found in the supermarket? > Additionally, I would like to know which mask is most commonly used. The one > I have is a small mask the covers my nose. I am getting used to it but > sometimes it leaves a mark on my face in the morning. > Any feedback will be greatly appreciated. > Thanks >—————————————————–

1.  I wash the mask everyday; skin oil makes it harder for masks to seal. I rarely clean the rubber tubing. 2 and 3. Do as the manual suggests. 4. This has been kicked around a lot but most would agree; follow the manual. Distilled water is probably on the same shelf as the mineral water and costs at my supermarket less than $1 U.S. gallon.  There is no reason to use mineral water and it isn’t pure. Hence, over time it will leave deposits in your equipment. You can check the archives for myriad discussions on this subject. Best wishes as you get used to the XPAP. Cheers, Hal S.

Response:

Hello all, I have been recently diagnosed with Sleep Apnea having 49.5 episodes every hour. So following my doctors suggestion, I started using CPAP couple of weeks ago. Since I am new to this, I would like to get some maintenance tips for the CPAP equipment: Following are the recommendations made in the manual: 1. Wash the mask and the plastic tube every day. 2. Wash the sponge filter every two weeks. 3. Replace the white filter every month. 4. Use distilled water as oppose to tap water. Should I strictly following the above recommendations? Can I use the mineral water found in the supermarket? Additionally, I would like to know which mask is most commonly used. The one I have is a small mask the covers my nose. I am getting used to it but sometimes it leaves a mark on my face in the morning. Any feedback will be greatly appreciated. Thanks

Response:

I used my CPAP last night for the first time. I had dreams for the first time in a very long time. I also went through today without a yawn. My problem… I used the humidifier … to keep from nasal blockage. I am using nasal pillows. After about 2 hours my nasal pillows start to leak water. If I turn the humidifier off … everything’s OK. What Am I doing wrong? How can I keep the pillows for collecting so much water? Suggestions? thanks Sweet dreams, jb

Response:

jb – Congratulations on dreaming again!  Isn’t it great?  I hope all your dreams are pleasant ones. The water is probably caused by condensation.  If your bedroom is cool enough and the humidifier is set up to a higher temperature, water will condense out of the humidified air. So try some of these things: 1. try turning your humidifier down until you no longer get condensation 2. insulate the hose; Conjo Distributing (www.cpapman.com) sells a sock-like tube that you run your hose through; you can also make your own. 3. make certain that the humidifier is lower than your head so that water drains towards it rather than towards your nose. 4. run your hose under the covers, although that is difficult with pillows because the hose comes from above your head Kent Taylor (Mongo) – Hide quoted text — Show quoted text -jb wrote in message … >I used my CPAP last night for the first time. I had dreams for the first >time in a very long time. I also went through today without a yawn. >My problem… I used the humidifier … to keep from nasal blockage. I am >using nasal pillows. After about 2 hours my nasal pillows start to leak >water. If I turn the humidifier off … everything’s OK. >What Am I doing wrong? How can I keep the pillows for collecting so much >water? Suggestions? >thanks >Sweet dreams, >jb

Response:

Shucks!  I was going to add something, but Mongo went and covered all the ideas!  ;^) jb, give those ideas a try, and see how it does. Regards, =jbf= John B. Fisher

Response:

    Just wanted to say welcome to our world, JB.  I don’t use nasal pillow so can’t help you with any suggestions on that one except to say that the condensation could mean that you need a heated humidifier as I’ve seen suggested in the past on this newsgroup. Jo

Response:

Make sure that you do not overfill the humidifier. I have a similar setup and do not have this problem.  I am wondering if it occurs in certain areas of the country. I live near Philadelphia. Bob Jo <can’tfin…@zoomnet.net> wrote in message

news:rsg6is1kj7193@corp.supernews.com… – Hide quoted text — Show quoted text ->     Just wanted to say welcome to our world, JB.  I don’t use nasal > pillow so can’t help you with any suggestions on that one except to say > that the condensation could mean that you need a heated humidifier as > I’ve seen suggested in the past on this newsgroup. > Jo

Response:

Thanks for all the suggestions. I have tried many of them…   -I lowered the humidifier and lowered the temperature setting as far as I could. … this really cut down on the condensation … however I’m still getting some. I guess last night as I lie in the direction of my wife, the nasal pillow blew out water on her. This does not lead to marital bliss!   I have another question …  On my nasal pillow there is a hole just above where the pillow connects to the tubing. This hole allows the pressurized air out. Is this supposed to be there? Again, last night not only did I spray my wife but I continued to blow air on her every time I faced her. … ya know, it’s tough to move all the equiptment to the couch! :)   jb – Hide quoted text — Show quoted text -Bob Stern wrote in message <7qa3g3$ag…@autumn.news.rcn.net>… >Make sure that you do not overfill the humidifier. >I have a similar setup and do not have this problem.  I am wondering if it >occurs in certain areas of the country. >I live near Philadelphia. >Bob >Jo <can’tfin…@zoomnet.net> wrote in message >news:rsg6is1kj7193@corp.supernews.com… >>     Just wanted to say welcome to our world, JB.  I don’t use nasal >> pillow so can’t help you with any suggestions on that one except to say >> that the condensation could mean that you need a heated humidifier as >> I’ve seen suggested in the past on this newsgroup. >> Jo

Response:

jb wrote: > On my nasal pillow there is a hole just above where the > pillow connects to the tubing. This hole allows the pressurized > air out.  Is this supposed to be there?

Yes!  Do NOT obstruct this, since it flushes CO2 from the circuit. > Again, last night not only did I spray my wife but I continued to > blow air on her every time I faced her. … ya know, it’s tough to > move all the equiptment to the couch! :)

Yup.  Both of you will need to get adjusted to this.  You might want to try using some sort of cover for the tubing … to cut down on the condenstation.  This might help avoid spraying your wife. Regards, =jbf= John B. Fisher

Response:

> > Again, last night not only did I spray my wife but I continued to > > blow air on her every time I faced her. … ya know, it’s tough to > > move all the equiptment to the couch! :) > Yup.  Both of you will need to get adjusted to this.  You might want to try > using some sort of cover for the tubing … to cut down on the > condenstation.  This might help avoid spraying your wife.

My breather hole (I don’t know if that’s what it’s called, but that’s what I call it) never spits water or moisture.  I use a non-heated humidifier (which does seem to work for me).  As for spraying or blowing air, I make a point to sleep on my back.  If I want to face my boyfriend (yeah, I’m gay), I either take off the CPAP, or use it to torment him (though he doesn’t seem to mind).  I read this to him before I sent it and he just laughed.     Gary (then again, he can sleep through a tornado – runs in his family) Rimar

Response:

On Mon, 30 Aug 1999 00:58:05 -0400, "Gary Rimar" <dyna…@mail.com> wrote: > |  > > Again, last night not only did I spray my wife but I continued to > |  > > blow air on her every time I faced her. … ya know, it’s tough to > |  > > move all the equiptment to the couch! :) > |  > > |  > Yup.  Both of you will need to get adjusted to this.  You might want to > |  try > |  > using some sort of cover for the tubing … to cut down on the > |  > condenstation.  This might help avoid spraying your wife. > |   > |  My breather hole (I don’t know if that’s what it’s called, but that’s what I > |  call it) never spits water or moisture.  I use a non-heated humidifier > |  (which does seem to work for me).  

[snip] I use nasal pillows and my exhaust outlet sometimes sprays water a bit, especially early in the morning when condensation has built up. I keep the heated humidifier turned up pretty high to help me with chronic stuffy nose problems, however. What causes this water spray is the condensed vapor from the heated humidifier and probably some condensed vapor from your exhaled breath collecting in the nasal shell. The only way to stop it is to turn down the heat and/or insulate the hose. Insulating the hose helps a great deal. You could also drape a shielding piece of cloth or even stiff paper in front of the exhaust, I suppose. Just be careful you don’t block that outlet, to avoid CO2 build up. —————————————————- "Trudy is Beauth, Beauth, Trudy"

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Categories: Lung Cancer

Question:

Can anyone tell me where I can find a mailing list that deals w/ the experimental treatment of lung cancer using thalidomide? thanks Kent Frazier

Response:

Hi,   See my post Re: Lung Cancer Ron

Response:

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Categories: Cancer Research

Question:

I think anyone with any type of cancer would be interested in Jomol, BUT what does it mean to us if not available?

Thats a good point but sadly the situation with new Cancer research (or new medical research for that matter) is pretty complicated and frustrating if the research does not belong or emminate from one of the big companies.  There are many relativly small researchers dealing with ground breaking and successful things but with no real voice. That aside, Jomol treatments are availible in Regensburg, Germany and have been undergone in other European Community countries with special permissions I beleive.  There have been a few foreign patients (of the +-1600 already treated) and they have all begun treatment in Germany and continued back in their home countries.  This is not ideal though as many cases where Jomol could offer much hope are with patients where a long journey would not be advisable. There are being made efforts to make Jomol availible to US patients I beleive as there is much interest in it. If you would like more specific information on the availibility of Jomol please e-mail the scientists via the web page ie: http://africa.com/~martin/jomol/ Good luck, Martin

Response:

Hi, Anyone interested in the ongoing research and work of the Jomol Cancer Institute in Regensburg, Germany can take a look at: http://africa.com/~martin/jomol/ Some new information has been added as the site is presently being updated. Thank you, Martin Gluckman

Response:

I think anyone with any type of cancer would be interested in Jomol, BUT what does it mean to us if not available? —

Response:

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Categories: Skin Cancer

Question:

Do you have procedures in place to recycle these sticks? Can we mail back the dead sticks to you for disposal or renewal? The last time I looked, most of the materials used in light sticks were environmentally acceptable.  Is your question based on legitimate concerns or a general "all chemistry is bad" attitude?  It would be my opinion that the environmental damage from the transportation system to return a spent light stick would be more damaging than proper disposal using socially acceptable (and properly maintained) landfills.

Where I live in Canada, the only place I have seen light sticks is at a large chain store in Canada called Canadian Tire. They stated on the packaging that the contents are toxic and medical attention should be seeked if ingestion occours. Also, they stated that a serious rash could develop if contact to the skin was made by the chemicals inside the stick. (Forgive me if I don’t use the exact wording, I forget exactly what it says). If you spill bleach, laundry detergent, drain cleaner, or any of thousands of other materials in your home do you call poison control?  Hopefully you keep these, as well as light sticks and other possibly hazardous items, out of the reach of children and pets.

Over 90% of our cleansers we use are all natural. A belly ache is the worst that we could get from most of it. If it can cause problems, it’s locked in a cabinet. I once found my 2 year old eating some soap that we had made from 3 types of oil and some ground cinnamin. Seems he thought they were cinnamin buns….:) Burning nearly anything can create environmentally unacceptable gases, soot, etc.–have you checked with the maker of your candles to make sure the sulfur content (as well as any other possible trace elements) is acceptable?

I agree that burning anything is enviromentally unacceptable, but is a lot less impact than disposing of flashlight batteries or other chemical substances. For the amount of light I need when it is dark, the candle suffices. As far as sulfer content, couldn’t tell you, but it is probably less than the matches I used to use. Now I carry a Zippo lighter because it is a little more windproof. Reusable too. While my response is at least an ember if not a flame, keep in mind that the only light source that is absolutely, completely, environmentally sound comes up each morning at sunrise and disappears at sunset.

Still have found out how to use that resource without chemical storage. too bad, because it is a great source of light… Anything beyond that requires that we do a bit of chemistry, physics, and engineering with the resultant (normally acceptable) damage to the ecosystem.  By simply responding to your (most likely legitimate) concern, I am adding a bit of pollution to this world.  I have to make the presonal choice as to whether or not it is worth it.  To use light sticks as a routine soure of illumination would be personally unacceptable to me.  To use them as a convenient emergency light in my camping gear, or as a demonstration of interesting chemistry to a group of school children is perfectly acceptable.  I will not give them out at Halloween–but I will not chastise the children who are enjoying them.

John, my comments were legitamite. I sold my car years ago to do my part. Travel only by bicycle or foot. We try to use organic products when possible and buy in bulk using our own containers.  Agreed, science has brought us some many wonders, the internet included, but there has to be a small part that we all play in the ecosystem. I try, as do others, to put a limit on my lifes effects on the environment. Little as they may be, they are a start. I too think that these would be great in an emergency, but I have my candle lanterns for that. I also have a rechargable flashlight in case a candle could not be used due to safety. The demonstration to children would be a grand way of showing chemical interactions (almost as good as the vinegar and baking soda volcanoes:). But as a regular use item (which candles are for us), I would have to no. On another note, Brian, (the original poster) emailed me to say that his company would happily take back any spent sticks that customers want to return. Cudos for them. It has already been pointed out that they are safe (not like the ones in Canada from some other company) and non-toxic. It is nice to see a company repsond positively to concerns of a potential customer without trying to change the subject. — Kevin Haryett Sudbury Area Mountain Biking Association http://icewall.vianet.on.ca/pages/samba

Response:

Curtis Anderson confused me with:         "The CYALUME lightstick contains dilute hydrogen peroxide in a   phthalic ester solvent contained in a thin glass ampule, which is   surrounded by a solution containing a phenyl oxalate ester and the   fluorescent dye 9,10-bis(phenylethynyl)anthracene…When the ampule is   broken, the H2O2 and oxalate ester react.." ?????? I’m not sure of the names of the elements, but when they developed light sticks, didn’t they just use the same chemicals used by lightning bugs? Or did my mom just make that up? Greg L.

I have done this, the chemicals ( which were available frome someone like edmund sci.) were lucferin, and luciferase, and while fun, had a relatively low light output, and were a bluer blue green. I am not supprised that  the chemicals are different, and are derive the required power through a different, simpler, higher energy reaction ( oxidation by H2O2 in the above) The light output per unit volume is outstanding in light sticks, as is the color range, and the duration of the light output. In the home hobby version above, a half an hour was a long reaction. While camping, I have had light sticks still be visible the NEXT night. Chandra

Response:

the names of the elements, but when they developed light sticks, didn’t they just use the same chemicals used by lightning bugs? Or did my mom just make that up?" The lucirein and luciferase from fireflies are too costly to be used in light sticks.  Your mom probably heard the wrong info from somebody. Marvin Margoshes

Response:

I got curious about light sticks and found the following while surfing around: Curtis ——  Chemical Demonstrations [1] ( v.1 p.146), by Bassam Shakhashiri, offers a thorough discussion of CYALUME lightsticks. Professor Shakhashiri is at  the University of Wisconsin, Madison, I believe.        "The CYALUME lightstick contains dilute hydrogen peroxide in a  phthalic ester solvent contained in a thin glass ampule, which is  surrounded by a solution containing a phenyl oxalate ester and the  fluorescent dye 9,10-bis(phenylethynyl)anthracene…When the ampule is  broken, the H2O2 and oxalate ester react.."

The only ester I know of was on Sanford & son. Here is my retention from college chemistry: Put the milk in the glass then pour in the Hershey Syrup or it will stick to the bottom of the glass. Thanks, but does anybody here speak English?

Response:

I got curious about light sticks and found the following while surfing around: Curtis ——   Chemical Demonstrations [1] ( v.1 p.146), by Bassam Shakhashiri, offers a thorough discussion of CYALUME lightsticks. Professor Shakhashiri is at   the University of Wisconsin, Madison, I believe.         "The CYALUME lightstick contains dilute hydrogen peroxide in a   phthalic ester solvent contained in a thin glass ampule, which is   surrounded by a solution containing a phenyl oxalate ester and the   fluorescent dye 9,10-bis(phenylethynyl)anthracene…When the ampule is   broken, the H2O2 and oxalate ester react.."

Response:

Soory to quote it all but I felt others should see it all before comment is made. The question still has not been answered. I am not anit-chemical. Most of us work for an oil company, OK!?

FYI, that response you got wasn’t from the original guy from Kailume. It was someone else…  As for toxicity?  I dunno… :)                                         James

Response:

While no major harm was done, I do know of a case where minor skin irritation occured when one of the chemical light necklaces broke and the contents got on the child’s skin.  Immediate washing with soap and water took care of the problem.

Response:

If you spill bleach, laundry detergent, drain cleaner, or any of thousands of other materials in your home do you call poison control?  Hopefully you keep these, as well as light sticks and other possibly hazardous items, out of the reach of children and pets. Actually, I’ve always had this question, also.  These light sticks are usually sold to kids at carnivals, fireworks, etc.  I’ve often wondered if what was inside was safe to the children if they were borken open and would still be interested in a qualified answer.

The worst thing about them is that the stuff stains clothes if it leaks. Otherwise they are fairly innocuous (though I wouldn’t recommend drinking the stuff — except to a few of my "favorite" posters (and for them I’d recommend eating the little glass capsule as well)). BTW, the things produce some pretty colorful flames when burned. Dan Hicks http://www.millcomm.com/~danhicks/

Response:

If you spill bleach, laundry detergent, drain cleaner, or any of thousands of other materials in your home do you call poison control?  Hopefully you keep these, as well as light sticks and other possibly hazardous items, out of the reach of children and pets.

Actually, I’ve always had this question, also.  These light sticks are usually sold to kids at carnivals, fireworks, etc.  I’ve often wondered if what was inside was safe to the children if they were borken open and would still be interested in a qualified answer. — YIS, Jeff Nagel

Response:

– Hide quoted text — Show quoted text – I while back I read a posting from a STUDENT concerning a report on Lightsticks. I am the President of Internet Marketing for Line Lights Inc., producers of the highest quality lightsticks in the world. If you want more information on Kailume Lightsticks please go to URL: http://www.aseere-systems.com/lightsticks SOON TO BE: http://www.lightsticks.com Do you have procedures in place to recycle these sticks? Can we mail back the dead sticks to you for disposal or renewal? The last time I looked, most of the materials used in light sticks were environmentally acceptable.  Is your question based on legitimate concerns or a general "all chemistry is bad" attitude?  It would be my opinion that the environmental damage from the transportation system to return a spent light stick would be more damaging than proper disposal using socially acceptable (and properly maintained) landfills.                                                      If my dog or kids break one of these open, do I have to call poison control? If you spill bleach, laundry detergent, drain cleaner, or any of thousands of other materials in your home do you call poison control?  Hopefully you keep these, as well as light sticks and other possibly hazardous items, out of the reach of children and pets. I have to ask because these are the reasons that I use a candle lantern. There is enough stuff out there that will cause problems in the environment that I feel that candle lanterns are a better choice. Burning nearly anything can create environmentally unacceptable gases, soot, etc.–have you checked with the maker of your candles to make sure the sulfur content (as well as any other possible trace elements) is acceptable? This is not a flame. If your light sticks can be renewed/recycled and are made of non-toxic recyclable substances, I’ll check them out. If not, I’ll pass. I’m sure others will as well. — Kevin Haryett While my response is at least an ember if not a flame, keep in mind that the only light source that is absolutely, completely, environmentally sound comes up each morning at sunrise and disappears at sunset. Anything beyond that requires that we do a bit of chemistry, physics, and engineering with the resultant (normally acceptable) damage to the ecosystem.  By simply responding to your (most likely legitimate) concern, I am adding a bit of pollution to this world.  I have to make the presonal choice as to whether or not it is worth it.  To use light sticks as a routine soure of illumination would be personally unacceptable to me.  To use them as a convenient emergency light in my camping gear, or as a demonstration of interesting chemistry to a group of school children is perfectly acceptable.  I will not give them out at Halloween–but I will not chastise the children who are enjoying them.

Soory to quote it all but I felt others should see it all before comment is made. The question still has not been answered. I am not anit-chemical. Most of us work for an oil company, OK!? Are they safe to swallow? Are the things non-toxic? If you know why wont you say? If you don’t know why get so defensive? I keep bleach, away from my kids, but I still worry. You say most items in the light stick are environmentally safe. This would mean to any thinking body that the other ingredients are not environmentally safe. As far as the suposition that sennding them back would be more environmentally unsafe, I disagree. If the BSA camps had a big empty box to collect them in it would definitely pay to ship back large quantities at the end of the season. This is based on the fact that they ARE non-toxic.  If they are not non-toxic how much damage would they have to do before it was worth it to recycle.

Response:

| The last time I looked, most of the materials used in light | sticks were environmentally acceptable.  Is your question | based on legitimate concerns or a general "all chemistry is | bad" attitude?  It would be my opinion that the environmental | damage from the transportation system to return a spent | light stick would be more damaging than proper disposal | using socially acceptable (and properly maintained) landfills. | Very good, simple example of the tradeoffs of recycling, but of course you can add to the tradeoff the cost of the transportation to the landfill. | Burning nearly anything can create environmentally unacceptable gases, | soot, etc.–have you checked with the maker of your candles to make | sure the sulfur content (as well as any other possible trace elements) | is acceptable? | | This is not a flame. If your light sticks can be renewed/recycled and | are made of non-toxic recyclable substances, I’ll check them out. If | not, I’ll pass. I’m sure others will as well. | | — | Kevin Haryett | | While my response is at least an ember if not a flame, keep in mind that | the only light source that is absolutely, completely, environmentally | sound comes up each morning at sunrise and disappears at sunset.    ^^^^^^  really?  You never wear sunscreen, worry about skin cancer, … I think that even being 93,000,000 miles from a large fusion reactor with the minimal shielding of the earth’s atmosphere and the magnetic field is still iffy.  Look at how much ionizing radiation you get from the sun! This is still a tradeoff, not an absolute good. | Anything beyond that requires that we do a bit of chemistry, physics, and | engineering with the resultant (normally acceptable) damage to the | ecosystem.  By simply responding to your (most likely legitimate) | concern, I am adding a bit of pollution to this world.  I have to | make the presonal choice as to whether or not it is worth it.  To use | light sticks as a routine soure of illumination would be personally | unacceptable to me.  To use them as a convenient emergency light in | my camping gear, or as a demonstration of interesting chemistry to a | group of school children is perfectly acceptable.  I will not give them | out at Halloween–but I will not chastise the children who are enjoying | them. | | — | | John C. Huffman                                   | —

Response:

I while back I read a posting from a STUDENT concerning a report on Lightsticks. I am the President of Internet Marketing for Line Lights Inc., producers of the highest quality lightsticks in the world. If you want more information on Kailume Lightsticks please go to URL: http://www.aseere-systems.com/lightsticks SOON TO BE: http://www.lightsticks.com Do you have procedures in place to recycle these sticks? Can we mail back the dead sticks to you for disposal or renewal?

The last time I looked, most of the materials used in light sticks were environmentally acceptable.  Is your question based on legitimate concerns or a general "all chemistry is bad" attitude?  It would be my opinion that the environmental damage from the transportation system to return a spent light stick would be more damaging than proper disposal using socially acceptable (and properly maintained) landfills.                                                      If my dog or kids break one of these open, do I have to call poison control?

If you spill bleach, laundry detergent, drain cleaner, or any of thousands of other materials in your home do you call poison control?  Hopefully you keep these, as well as light sticks and other possibly hazardous items, out of the reach of children and pets. I have to ask because these are the reasons that I use a candle lantern. There is enough stuff out there that will cause problems in the environment that I feel that candle lanterns are a better choice.

Burning nearly anything can create environmentally unacceptable gases, soot, etc.–have you checked with the maker of your candles to make sure the sulfur content (as well as any other possible trace elements) is acceptable? This is not a flame. If your light sticks can be renewed/recycled and are made of non-toxic recyclable substances, I’ll check them out. If not, I’ll pass. I’m sure others will as well. — Kevin Haryett

While my response is at least an ember if not a flame, keep in mind that the only light source that is absolutely, completely, environmentally sound comes up each morning at sunrise and disappears at sunset. Anything beyond that requires that we do a bit of chemistry, physics, and engineering with the resultant (normally acceptable) damage to the ecosystem.  By simply responding to your (most likely legitimate) concern, I am adding a bit of pollution to this world.  I have to make the presonal choice as to whether or not it is worth it.  To use light sticks as a routine soure of illumination would be personally unacceptable to me.  To use them as a convenient emergency light in my camping gear, or as a demonstration of interesting chemistry to a group of school children is perfectly acceptable.  I will not give them out at Halloween–but I will not chastise the children who are enjoying them. — | John C. Huffman                                   |

Response:

I while back I read a posting from a STUDENT concerning a report on Lightsticks. I am the President of Internet Marketing for Line Lights Inc., producers of the highest quality lightsticks in the world. If you want more information on Kailume Lightsticks please go to URL: http://www.aseere-systems.com/lightsticks SOON TO BE: http://www.lightsticks.com Thanks, Brian Cimins

Response:

I while back I read a posting from a STUDENT concerning a report on Lightsticks. I am the President of Internet Marketing for Line Lights Inc., producers of the highest quality lightsticks in the world. If you want more information on Kailume Lightsticks please go to URL: http://www.aseere-systems.com/lightsticks SOON TO BE: http://www.lightsticks.com

Do you have procedures in place to recycle these sticks? Can we mail back the dead sticks to you for disposal or renewal? If my dog or kids break one of these open, do I have to call poison control? I have to ask because these are the reasons that I use a candle lantern. There is enough stuff out there that will cause problems in the environment that I feel that candle lanterns are a better choice. This is not a flame. If your light sticks can be renewed/recycled and are made of non-toxic recyclable substances, I’ll check them out. If not, I’ll pass. I’m sure others will as well. — Kevin Haryett Sudbury Area Mountain Biking Association http://icewall.vianet.on.ca/pages/samba

Response:

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Categories: Cancer Hospital

Question:

I’m having trouble getting my non-ID from the State of NY (So what is new?) and will post this again, just in case: Me:  born "Baby Girl King" at Northside Hospital, Rochester NY      11/19/60; 5:56 am.  Biomom apparently stayed at Northaven      Agency for a time.  Any hope of any medical info.?  My      brother (b. 9/23/63, also in Rochester) died of a hereditary      form of cancer; I’d like to know if there’s anything I should      know too….      Anne

Response:

Hi, Did you try getting your medical records from the hospital? Just pretend you weren’t adopted, born to a woman named King at the time and date. It worked for me (in Illinois). Good luck.

Response:

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